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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What's A Common Misconception About Parkinson’s?

By A MyParkinsonsTeam Member 179 answers
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Are You Frustrated With Finding Effective Treatments For Parkinson’s?

By A MyParkinsonsTeam Member 124 answers
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Who Else Sometimes Question Their Sanity?

By A MyParkinsonsTeam Member 81 answers
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Do You Or Your Loved One Follow A Specific Diet To Help With Parkinson's?

By A MyParkinsonsTeam Member 159 answers
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12526 questions

I Would Like To Know What I Can Take For The Shaking In Side Of Me. I'm On Carbidopa Levodopia 4 Times A Day. Just Increased.by Half Of Pil

A MyParkinsonsTeam Member asked a question 💭
Barnegat, NJ
A MyParkinsonsTeam Member

That's great news

September 27, 2024

What Do You Do For Someone Confined To Bed? Has Hallucinations Sometimes And Fights Dragons. Strong In Upper Body, Can "fall" From Bed.

A MyParkinsonsTeam Member asked a question 💭
London, UK

He has Advanced Parkinson's Disease and Dementia. Bedridden and non-communicative although occasionally tries to speak but I rarely understand what my partner for 48 years is saying. I blether about our sons, their wives, their first child which both couples are expecting. I blether about anything and he looks blankly back
Physically his legs are contracted under his chin and he does not straighten them. The Occupation Therapist has changed his chair (he fell out of Chair 1 on day 2 out of… read more

A MyParkinsonsTeam Member

Caring for someone with Parkinson's disease who is confined to bed and experiences hallucinations can be challenging. Here are some tips based on the knowledge base:

1. Safety Measures
- Bed… read more

August 17, 2024

How Many Have Had Staples In Their Head Due To A Fall In Tub?

A MyParkinsonsTeam Member asked a question 💭
Omaha, NE

I was actually done with the bath stepped back in to hang a towel on th back wall. WHOA! So many concerned people I spent the day in ER waiting my turn

A MyParkinsonsTeam Member

Hope that you are ok. I had my hanyman install safety bars all around my bathroom
.. I feel better knowing they are there.

August 19, 2024

Do You Also Feel Empowered When You Learn To Cope With One’s Of The Problems Of PD?

A MyParkinsonsTeam Member asked a question 💭
Johannesburg, ZA
A MyParkinsonsTeam Member

Hi Tina. Good news

August 23, 2024

Anyone's Taking Nourianz, I Just Started It. Having Any Issues With Nourianz?

A MyParkinsonsTeam Member asked a question 💭
Clementon, NJ
A MyParkinsonsTeam Member

Nourianz (Istradefylline) is used as an adjunctive treatment to levodopa and carbidopa for Parkinson’s disease, particularly for managing “off” episodes. Some common side effects include:

-… read more

August 16, 2024

How Much Water Is Enough? I Dislike Water And It Fills My Stomach So I Am Never Hungry. I Do Flavor It Which Makes It Easier To Drink.

A MyParkinsonsTeam Member asked a question 💭
Fort Myers, FL
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member.....Thanks for the likes and hugs, hope a bit of Joy finds its way to you.
Best, Beau (C7)

August 20, 2024

How Can I Write Checks With Micrographia?

A MyParkinsonsTeam Member asked a question 💭
North Grafton, MA

Is there a rubber stamp with numbers and letters that I can get? I have purchased a stamp with my signature.

A MyParkinsonsTeam Member

How sad! What a lovely husband you are to write letters to your wife for her to find. Such precious keepsakes. She is lucky to have you.

I got myself a stamp with my signature and figured out how to… read more

August 26, 2024

How Can I Change My Name On Here It’s Not Right?? My Name Is Not Nama!!

A MyParkinsonsTeam Member asked a question 💭
Fayetteville, AR
A MyParkinsonsTeam Member

To change your username on MyHealthTeam, follow these steps:

1. Log in to your profile
2. Open the menu icon (3 horizontal lines) on the top left of the page.
3. Under Settings, select Account… read more

August 16, 2024

It Stinks, Olfactory Hallucinations?

A MyParkinsonsTeam Member asked a question 💭
Mesa, AZ

I know a lot of us have olfactory hallucinations. The most common I hear about is the smell of cigarette smoke. Now I've had olfactory hallucinations of something far less pleasant, dirty diapers.

Yes I know I do have lots of grandkids, but no dirty diapers in the house for a long time. My question is does anyone who have olfactory hallucinations smell something good?

🦉

A MyParkinsonsTeam Member

Good idea Mountain Woman, I think I will have a bowl of chocolate by my front door, every time I come home I can take a big whiff

August 21, 2024

Anyone Researching Or Trying Light Therapies? In Particular Symbyx, Las

A MyParkinsonsTeam Member asked a question 💭
St Helens, OR
A MyParkinsonsTeam Member

Wow. Needed that.

August 18, 2024
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