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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Could You Share Any Dietary Changes And Tips That Have Helped With Parkinson’s?

By A MyParkinsonsTeam Member 167 answers

How Do Beverages With Caffeine Affect Your Parkinson's?

By A MyParkinsonsTeam Member 190 answers

Which Parkinson’s Symptom Surprised You The Most?

By A MyParkinsonsTeam Member 334 answers

Who Else Doesn't Do Excersizes?

By A MyParkinsonsTeam Member 112 answers
12155 questions

Does Anyone Feel Like They Are Being Held Back By Telling You Your Too Pick Or U Cant Do That And Don't Over Due

A MyParkinsonsTeam Member asked a question 💭
Wisconsin Rapids, WI
A MyParkinsonsTeam Member

Many people with Parkinson's disease feel frustrated by well-meaning but unhelpful advice. Common sentiments include:

- "It can't be that bad."
- "At least it's not cancer."
- "Don't let it define… read more

10 hours ago

Have Any Of You Ever Weaned Off Of Gabapentin? How Long Did It Take And What Were The Side Effects?

A MyParkinsonsTeam Member asked a question 💭
North Grafton, MA
A MyParkinsonsTeam Member

Thanks. I know this stuff is tricky.

7 hours ago

Do Any Of You Have Recommendations For A Bed/mattress That Is 'Parkinson's Friendly'?

A MyParkinsonsTeam Member asked a question 💭
Waconia, MN
A MyParkinsonsTeam Member

For a bed or mattress that is "Parkinson's friendly," consider the following tips from my knowledge base:

- Silk or Satin Sheets and Pajamas: These materials can make moving in bed easier, saving… read more

2 days ago

I Was Diagnosed 3 Year’s Ago. I Can Run But Have Problem Walking. Does This Sound Familiar?

A MyParkinsonsTeam Member asked a question 💭
California, CA
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member - are you looking for the word festination or festinating? That would make sense. Since festinating is leaning forward and taking small steps that get faster and faster… read more

1 day ago

Why Is My Husband Aways Dizzy

A MyParkinsonsTeam Member asked a question 💭
Baton Rouge, LA
A MyParkinsonsTeam Member

Dizziness in Parkinson's disease can be caused by several factors:

- Medications: Some Parkinson's medications, like carbidopa/levodopa, can cause dizziness as a side effect. If you suspect this… read more

2 days ago

Is The NHS Broken?

A MyParkinsonsTeam Member asked a question 💭
Stoke-on-Trent, UK

I need a colonoscopy. Apparently before that I need a "bowel preparation pack". I don't know exactly what's in it, but I have to pick it up IN PERSON from the hospital -a 15 minute drive each way. The way my symptoms are right now I explained I may not be able...but they're refusing to post it to me.

Broken. The NHS is broken.

A MyParkinsonsTeam Member

Very similar here Ginny and I have two doses too. Already recruited my best friend to watch me, though I'm going to resist the sedative if at all possible. I talk rubbish and can get quite offensive… read more

4 hours ago

Yes, I'm Trying To Educate Myself In The Ultrasound Laser Treatment For Severe Right-side Tremors. I'm Currently Taking Medication That Isn'

A MyParkinsonsTeam Member asked a question 💭
Murphy, TX

Is Your Quality Of Life Proportional To The Size Of Your Room/property?

A MyParkinsonsTeam Member asked a question 💭
Stoke-on-Trent, UK

This is just a random thought I had. I used to have a large house with main rooms like kitchen, lounge and bedrooms all measuring at least 15x15 feet (5x5 metres).

I now live in my Mum's old house, where the rooms are no bigger than 3.5 metres in the largest direction.

I feel far less "happy" than I did in the old house.

There are a lot of other factors I know; I was in a good relationship, in better health and had a good job. However, I'm increasingly running into space as a barrier… read more

A MyParkinsonsTeam Member

For me, it’s not the size of where I live, but it’s the balance and walking issues. Parkinson’s has so lovingly given me the results of me not being able to leave the house for one or two weeks at a… read more

30 mins ago

How Does Botox Feel?

A MyParkinsonsTeam Member asked a question 💭
Stoke-on-Trent, UK

In thighs in particular...does it make it hard to walk? Any sensation at all?

A MyParkinsonsTeam Member

Marilyn, that's really interesting what you say about your left ankle because mine does the same thing. I always thought it was because I had a fracture and a bad sprain several years ago and it made… read more

18 hours ago

Has Anyone Yelled At Your Hand To Stop The Tremors And It Works For A Short Time, Then The Tremors Return.

A MyParkinsonsTeam Member asked a question 💭
Waterford, CA
A MyParkinsonsTeam Member

There is no mention in my knowledge base about yelling at one's hand to stop tremors. However, managing Parkinson's tremors can involve specific exercises. For example, engaging in exercises like "the… read more

3 days ago
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