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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Could You Share Any Dietary Changes And Tips That Have Helped With Parkinson’s?

By A MyParkinsonsTeam Member 167 answers
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What's A Common Misconception About Parkinson’s?

By A MyParkinsonsTeam Member 179 answers
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When I Go For A Walk I Tend To Stagger Occasionally Does Anyone Else

By A MyParkinsonsTeam Member 202 answers
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Which Parkinson’s Symptom Surprised You The Most?

By A MyParkinsonsTeam Member 389 answers
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12527 questions

Does Anyone Else Suffer From Frequent Nausea? Mine Is Particularly Worse First Thing In The Morning.

A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

Hi Tina, I have sleep issues and it really affects my fatigue during the day. The lack of sleep does suck

August 16, 2024

Has Any Team Member Used The TAO Patch Advertised On Facebook. If So Does It Work For You And If Not Have You Been Able To Get 100% Refund.

A MyParkinsonsTeam Member asked a question 💭
Louisville, KY
A MyParkinsonsTeam Member

I’ve never heard of it. Google it. Facebook doesn’t have a very good track record with medical advice.

August 14, 2024

Do Others Also Have Problems With Dry Throats?

A MyParkinsonsTeam Member asked a question 💭
Johannesburg, ZA
A MyParkinsonsTeam Member

Please give me the name of the meds Rob.

August 24, 2024

Does Anyone Use Quest (Meta Quest) Virtual Reality To Exercise? I Have A Quest Headset And I Used To Use Supernatural But Its Too Hard Now

A MyParkinsonsTeam Member asked a question 💭
Medina, NY
A MyParkinsonsTeam Member

Sounds interesting

August 13, 2024

Anyone Having Trouble Keeping Their Eyes Open? Agnone Tried Botox ?

A MyParkinsonsTeam Member asked a question 💭
Sandy, UT
A MyParkinsonsTeam Member

I have the same problem with my eyes. I started using Botox this past March….it definitely helps, but with some issues. It takes about a month for my eyes to calm down after the dosage. I think it’s… read more

August 18, 2024

Hello All. I Had A Sweat Test A Year Ago Which Showed About 70% Anhidrosis With Sparing Of Lower Legs, Feet, Lower Arms, And Hands.

A MyParkinsonsTeam Member asked a question 💭
Northfield, MN

I did a google search which suggested that this sweat pattern points to alphasyneuropathy ( help me! I know that’s not the right word).
Anyways, i had the exact same test this year. The anhidrosis improved to about 40%.
Q1: is this improvement tell me anything about my parkinsonism?
Q2: why won’t the doctors even guess at my diagnosis? I want to know what to expect.

A MyParkinsonsTeam Member

I found this study about Parkinsonism and Anhidrosis. The Parkinsonism it mentions is MSA. This is not a diagnosis, simlply information to discuss with your Neurologist.

For more Information on MSA… read more

August 13, 2024

Has Anyone Taking Amantadine Had Any Issues With Increasing Muscle Spasms And Toe Curling?

A MyParkinsonsTeam Member asked a question 💭
Palmer, AK
A MyParkinsonsTeam Member

Some people taking amantadine, which is sold under brand names like Symmetrel and Gocovri, have reported side effects related to muscle movements. According to the knowledge base:

- Amantadine is… read more

August 13, 2024

I Am Crying.https://www.mayoclinic.org/drugs-supplements/rasagiline-oral-route/proper-use/drg-20068415

A MyParkinsonsTeam Member asked a question 💭
Brooklyn, NY

Research On Gpl6 For Parkinson’s

A MyParkinsonsTeam Member asked a question 💭
Bklyn ny

I Have A Terrible Time Walking And Don’t Understand Why I Have Gone Downhill So Quickly.

A MyParkinsonsTeam Member asked a question 💭
Hewitt, TX

I take pramipexole and carbodopa/levodopa and it is not controlling it. What should I be using? Any natural cures or other things to try?
I am so frustrated.

A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member - have you tried physical therapy? The LSVT-Big program can help a lot with walking and balance. Rock Steady Boxing is also a good option if you have it available near you.

November 22, 2024
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