I was diagnosed in Feb 2007 and have been through a lot of different meds. But in the last four years I seem to have achieved something that seems to be working for me. I am currently taking Rytary and have been for around 4 years now, and started adding Inbrija (inhalant)) twice a day about 3 years ago. This combined with a constant exercise routine seems to be the right approach for me. I try to exercise 4-5 days a week. And I watch what I eat. I have not had a carbonated beverage in a year now . I noticed that I would have constipation after drinking anything carbonated. So I drink water ,most of the time and plenty of it. Lack of proper hydration has been my major issue, so I tend to eat a lot of fruits. My snack is either a fruit or a KIND bar. So far I have able to maintain some semblance of what is now a normal life. It will never be what it was, but it is manageable. There are so many medicines out there and they can affect each of us differently, all we can do is try and adjust based in what we experience. A good physician is key, because they are our gateway to medication. If we feel like we are not being listened to, then it may be time to get a second opinion. The other thing I would recommend is get involved with a local support group if one is available. Everything I am involved with is a result of a local support group recommendation/interaction, I can't emphasis enough the influence it has had on me,

Take Care and Be Safe

Good Afternoon everyone I have not taken any medication and I have the trembling of the hands and lips every now and then my toes on my left feet curl under I just Thanks God for every day and think Positive which helps me get through the days don’t stop 🛑 Living just do the best you can and Pray 🙏🏽 ❤️💯🙏🏽

There haven’t been any real answers in all these decades. Big pharma is not about to let anything out for anyone even if they have it .. they have NEVER cured anything… so my advice is just deal with it all. It’s progressively debilitating … I don’t have to tell anyone that.. where does all the money go? I’d love to see the ledgers and science on it…. I wish everyone the best but don’t hold your breath.

As I've mentioned before I was dx 23 years ago, I'm 58 now and have been on CL for probably 15 or so years (I was in denial for the first 7ish years so I did not start meds until I absolutely had to). Well I was up to 12 to 14 CL pills a day and often they never kicked in consistently anymore, what was worse was timing my meals around it because every 3 hours I had to take 2. The off times were greater than the on times. But luckily Vyalev became available in Canada this past April and my MDS said I was a good candidate with Advanced parkinsons. This is also known as Produodopa. It is administered subcutaneously 24 hours a day and absorbed through the skin. It took at least 8 weeks to get used to and arrive at the settings that seemed right for me. Its been a game changer! I've had a couple issues because my skin is so sensitive though so I just have to make sure I am extra cautious in cleaning my abdomen with medicated soap and the alcohol wipes before the titration device gets inserted. This is currently not covered under the provincial health program either and because I still am able to work I had to use private health coverage through my employer. I heard its suppose to be approved in the US soon and hopefully in Canada provincial programs kick in, google it, lots of studies currently on it!.

It is frustrating especially how much my Dr. doesn't know about alternative solutions for PD symptoms. THC has helped me with off periods and dealing with pain. I also found a trainer who understands PD and has developed a way to use exercise along with cognitive mnemonics to stop tremors and help with handling anxiety when having to speak. For example while exercising, she has me repeat the first 20 digits of Pi - .314159265358979323846 and then syncopate rhythmically with left and right punches - odd numbers with left punch and even numbers with right punches. It's challenging but very effective. Google Darby Schlosser at Motorvation!