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Do you or your loved one follow a specific diet to help with Parkinson's?

MyParkinsonsTeam asked a question 💭
San Francisco, CA
September 24, 2024
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Answer Summary

Members shared a wide range of dietary approaches for managing Parkinson's disease, with the Mediterranean diet emerging as the most popular... Read more

Members shared a wide range of dietary approaches for managing Parkinson's disease, with the Mediterranean diet emerging as the most popular choice for its emphasis on vegetables, fruits, fish, and limited processed foods. Several members highlighted practical considerations like timing protein intake at least 30 to 60 minutes away from levodopa medication to improve absorption, managing constipation through fiber supplements and stool softeners, and addressing common challenges such as weight loss, diminished appetite, and changes in taste or smell. A recurring theme was the balance between following nutritionist recommendations and honoring personal food preferences and cultural eating traditions, with many members emphasizing the importance of staying hydrated, exercising daily, cutting back on sugar and processed foods, and allowing themselves grace when strict adherence to a diet becomes overwhelming.

A MyParkinsonsTeam Member

We are retired, but tend to eat more for a diabetic as my husband is diabetic. I have cut out most of my sweets as that was interfering with the way i felt after i ate them. I have lost 35 lbs since being diagnosed with PD. We are trying to avoid too much salt as I have hbp. Mostly eat veggies, a little protein and avoid lots of carbs. Protein does affect your medications if you eat it too soon before or after you take your meds. We also take vitamins D,E,Fish oil, Glucosamine,daily vitamins, as well as Preservision and COQ10.

October 20, 2024
A MyParkinsonsTeam Member

I recently went to a dietician and she gave me some excellent resources. “Parkinson’s Diease: Nutrition Matters” put out by National Parkinson Foundation. This is very good. It details the interaction between protein and levodopa, suggestions on how to handle constpation, why you need to drink water, and other subjects including menu suggestions and recipes.

The other is “Good Nutrition and Parkinson’s Disease” this is put out by American Parkinson Disease Association, Inc. This is also a very good resource. It goes through the role of carbohydrates in the diet, how to figure the amount of protein you need. The roles of fiber, vitamins and micronutrients are all covered. It also has recipes.

September 25, 2024
A MyParkinsonsTeam Member

It's a challenge to keep weight on... I'm in my 5th year have lost 20 pounds..since this nightmare begañ have been trying to gain weight..with no luck.
I'm eating the Mediterranean diet lots of fruits,vgetables
Am experiencing pain in my calves and thighs. I'm on the treadmill every day for 1-2 miles...
Anyone else experiencing "stiffness"?

September 24, 2024
A MyParkinsonsTeam Member

A good sense of humor is always necessary.

October 18, 2024
A MyParkinsonsTeam Member

No, I have no diet whatsoever. At some point, I draw a line from doing physical therapy exercises every day, seeing a home health nurse , doing your occupational therapy exercises daily. I’m going to enjoy something and that is eating what I want including chocolate.

October 14, 2024

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