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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Which Parkinson’s Symptom Surprised You The Most?

By A MyParkinsonsTeam Member 389 answers
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What's Your Mantra ?

By A MyParkinsonsTeam Member 96 answers
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How Do Beverages With Caffeine Affect Your Parkinson's?

By A MyParkinsonsTeam Member 190 answers
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What Are Your Top Tips For Dealing With Parkinson’s In The Heat?

By A MyParkinsonsTeam Member 144 answers
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12531 questions

I Am In A Trip To US With Time Zone -6 Hours With Respect Home. Is There A Protocol/ Best Practice / Advice On How To Manage The Medicine?

A MyParkinsonsTeam Member asked a question 💭
Roskilde, DK

I take Madopar and pramipexoledeposit as follow.
Pramipexole 125 + Madopar 200 / Madopar 150 / Madopar 200 /
and Madopar 150+ pramipexole 62/. ( I did not write the decimals"

A MyParkinsonsTeam Member

When traveling across time zones, managing medication for Parkinson's disease can be challenging. Here are some general tips to help:

1. Consult Your Healthcare Provider: Before your trip, discuss… read more

August 10, 2024

How Did You Feel When You Was First Diagnosed?

A MyParkinsonsTeam Member asked a question 💭
Champaign, IL
A MyParkinsonsTeam Member

I was diagnosed in Jan 2024. There is lots of info out there. You can learn a lot from this site. The one thing that books can't teach, is how to live with it. That you can get right here!! I've had… read more

August 11, 2024

Vascular Parkinsonismo

A MyParkinsonsTeam Member asked a question 💭
Italy, TX
A MyParkinsonsTeam Member

Vascular parkinsonism is a movement disorder and a type of atypical parkinsonism. Here are some key points about it:

- Symptoms: It includes symptoms similar to Parkinson's disease, such as… read more

August 9, 2024

Where Do I Go To Get Instructions On How This Site Works? Is There A Manual I Can Refer To?

A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

I accidentally blocked a member from my team. Does anyone know how to unblock them? I need to learn how to use this site

November 5, 2024

My Only "bad" Times Are Primarily At Night, With Getting To Sleep Is Challenging. Has Anyone Used "Bravenly", Drift? It's Helping Me.

A MyParkinsonsTeam Member asked a question 💭
Weatherford, TX
A MyParkinsonsTeam Member

Thanks for the info,I've been using melatonin and magnesium,plus Ambien. Maybe I should look into this ,still have trouble sleeping 😴

August 26, 2024

Team Question. I Noticed People Accidentally Lost Over 85 Percent Of Brain Injury Severe So Why Don't Have Parkinson?

A MyParkinsonsTeam Member asked a question 💭
Detroit, MI
A MyParkinsonsTeam Member

Paul guess we got lucky

August 8, 2024

,I Have Had PD For 20 Years And I Am In The Process Of Getting Evaluated For DBS? I Don't Have Tremors But Am Very Stiff And Had Very Bad

A MyParkinsonsTeam Member asked a question 💭
North Caldwell, NJ

Dyskinesia until my Sinemet was recently reduced. Will DBS improve my quality of life or will it just get me off meds . I have had many back surgeries and anxiety and this also can be a contributor to my problems. Has anyone had DBS at Mt. Sinai in NYC? My surgeon does the procedure under anesthesia. Thanks for any advice you can offer.

A MyParkinsonsTeam Member

It sounds like you're undergoing evaluation for Deep Brain Stimulation (DBS) for your Parkinson's Disease (PD). Here are some key points about DBS based on your knowledge base:

- Candidate… read more

August 8, 2024

I'm Taking Sinemet 4 Times Daily. It Seems To Result In Cyclical Effectiveness. Is There A Continuous Release Version For 24 Hr Relief ?

A MyParkinsonsTeam Member asked a question 💭
Fort Myers, FL
A MyParkinsonsTeam Member

According to today's email from Parkinson's News Today, there is a new extended release c/l that has been approved by the FDA and should be available in the US in September. it is called Crexont. httpread more

August 10, 2024

Anybody Have Young Onset Parkinson’s And Have Deep Brain Stimulation Would You Recommend It? If So, Why Or Why Not?

A MyParkinsonsTeam Member asked a question 💭
Gladstone, OR
A MyParkinsonsTeam Member

That I did have to shave all my hair. (I understand why but I didn't like it) there's something called a"honeymoon" period right after surgery where I was walking like normal for a week. Unfortunately… read more

August 27, 2024

Has Anyone Tried The CUE1 Gadget Supposed To Help Tremoring Amongst Other Things

A MyParkinsonsTeam Member asked a question 💭
Tunbridge Wells UK
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