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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anybody Have Young Onset Parkinson’s And Have Deep Brain Stimulation Would You Recommend It? If So, Why Or Why Not?

A MyParkinsonsTeam Member asked a question 💭
Gladstone, OR
August 6
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A MyParkinsonsTeam Member

I had my DBS done in April of 2022. BEST DECISION EVER. No tremors since. Hardly any foot dragging. There are some things I wish I knew before, but definitely with it.

August 7
A MyParkinsonsTeam Member

That I did have to shave all my hair. (I understand why but I didn't like it) there's something called a"honeymoon" period right after surgery where I was walking like normal for a week. Unfortunately I haven't had that feeling again. The DBS program can also help with speech and sleep. Your neurologist can program it in.

August 27
A MyParkinsonsTeam Member

What do you wish you knew before?

August 27
A MyParkinsonsTeam Member

I’m scheduled to have it September 9 and Im ready to cancel it because it’s scary!

August 7
A MyParkinsonsTeam Member

I'm terrified

August 6

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