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Which Parkinson’s Symptom Surprised You The Most?

A MyParkinsonsTeam Member asked a question 💭
San Francisco, CA
August 20
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A MyParkinsonsTeam Member

My inability to speak. I know what I wany to say but just cannot get it to come out of my mouth. When it does I am so low that no one can hear me This is very frustrating.

August 20
A MyParkinsonsTeam Member

In regards to PD symptoms that surprised me...the fact is that all of them do...there are 2 things you don't want to get...old age and PD...not necessarily in that order...🤠

August 30
A MyParkinsonsTeam Member

What has surprised me the most is how emotional I am now. I have always been a strong, independent person. I was never an emotional person, even in the worst of situations -- but now the least little thing unnerves me and I cry. Embarrasses me and that makes me more emotional. The second thing would be forgetting the what I am trying to say in the middle of the sentence. I know what I want to say but just cannot get the words out.

August 21
A MyParkinsonsTeam Member

The fact that no ones understands what it's like. "Just exercise more" "smile"etc... most days I feel stiff as a board and walking is painful.

September 4
A MyParkinsonsTeam Member

I was unprepared for problems with my equilibrium. At first I just thought I getting clumsy with age, but then I noticed the pattern . A quick left turn sometimes wants to pull me off my feet. When crouching I must be close to something to grab onto lest I fall over backwards trying to rise to a standing positon.

August 20

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