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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A MyParkinsonsTeam Member 137 answers
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How Do Beverages With Caffeine Affect Your Parkinson's?

By A MyParkinsonsTeam Member 189 answers
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Are You Frustrated With Finding Effective Treatments For Parkinson’s?

By A MyParkinsonsTeam Member 124 answers
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What’s One Thing About Parkinson's That People Rarely Discuss But Should?

By A MyParkinsonsTeam Member 172 answers
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12506 questions

Is There A Patch For C/L ?

A MyParkinsonsTeam Member asked a question 💭
Shelbyville, IL
A MyParkinsonsTeam Member

Thanks everybody....I'll ask my doc, even for a few years it would be nicer than the pills.

October 9, 2024

Dyskinesia? Bicycling ??

A MyParkinsonsTeam Member asked a question 💭
Mesa, AZ

Last night I spent hours bicycling in bed. All night long my legs were going in circles like I was on a bicycle. I have had RLS in the past. This was not RLS. My legs were making large circling moves rubbing legs against each other, in regular smooth patterns.

Weird, huh?
Has anyone else heard of something like this?

🦉

A MyParkinsonsTeam Member

I'm having trouble sleeping due to my right leg hurting and at times I keep moving it in a circle

October 8, 2024

I'm Not Sure I Will Get Responses , But, Has Anyone Tried Using Gummies...Marijuana? To Help With Pain And Also Sleep.

A MyParkinsonsTeam Member asked a question 💭
Hernando, FL
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member.....Evening, Andrea, hope this note finds you doing well. I've used CBD oil for years, only on those rare occasions when pain from pd rears its head. Using a dropper under… read more

October 4, 2024

Can An Illness Affect “on” And “off” Times?

A MyParkinsonsTeam Member asked a question 💭
TEXAS, TX
A MyParkinsonsTeam Member

Thank you.

October 4, 2024

I Started Taking Ongyntis About 6 Weeks Ago And Found It To Be A Big Help To Assist Me During My "off Time". What Are The Side Effects?

A MyParkinsonsTeam Member asked a question 💭
New York, NY1

During the short time I'm taking the 50mg caps, I have been having weird dreams and a feeling of nausea when I wake up. They might be side effects of the meds. I have been taking carbidopa/levodopa for 5 years and I take the Ongyntis as a boost once a day at bedtime. The medication has no generic therefore it's expensive,

A MyParkinsonsTeam Member

Ongentys (Opicapone) can indeed help manage "off" times in Parkinson's disease. However, it does come with potential side effects. Common side effects include:

- Blood pressure changes
- Dizziness or… read more

October 2, 2024

Is It Normal To Have Good/bad Days If I'm Not On Meds Yet? Will This Resolve At Least A Little Once I Get On The Meds?

A MyParkinsonsTeam Member asked a question 💭
Shawnee Mission, KS

I'm not on any meds as of yet. I am having really good/bad days - not much in between (i'll be ok for a few hours, then have major symptoms all across the board for a few hours). Is this normal? Will this resolve at least a little once they get my meds started?

A MyParkinsonsTeam Member

Welcome Pam. My guess is not necessarily but I'm just the chef here. Phil will be back this afternoon . 😄

October 3, 2024

Have A Lot Of Problems But Can't Get Anyone To Understand What Is Breathing Me.

A MyParkinsonsTeam Member asked a question 💭
Butlr, mo
A MyParkinsonsTeam Member

Please tell us and maybe someone here will understand .

October 7, 2024

I Would Like To Know What Supplements You’re Taking On Top Of Your PD Medications.

A MyParkinsonsTeam Member asked a question 💭
California, CA
A MyParkinsonsTeam Member

I take six each of vitamin D and coral calcium-three of each in the morning and three in the evening. I also take l-thenine and Cyprus to help with my moods. I feel that they help me stay focused!

October 2, 2024

Non Parkinson's Question...

A MyParkinsonsTeam Member asked a question 💭
Stoke-on-Trent, UK

...but I guess general old age question...

I had my central heating replaced last year. Why do central heating companies make a big fuss about installing insulation in your loft...and then go and install an extractor fan to suck the warm air out of the rooms with radiators so the heat never reaches the sodding loft in the first place?

In my bathroom they actually sited one directly above the radiator! Plus they are both linked to my light switches, so they come on when I turn on the… read more

A MyParkinsonsTeam Member

Nigel, one needs to extractor man like you from the crowd's. You're a natural ! 😏

October 2, 2024 (edited)

Does Anyone Have Pain And/or Anxiety Attacks Associated With PD?

A MyParkinsonsTeam Member asked a question 💭
Pitman, NJ
A MyParkinsonsTeam Member

Yes anxiety and stress, so muck I did research and this site helped.
https://www.apdaparkinson.org/article/stress-an...

November 5, 2024
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