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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Are You Frustrated With Finding Effective Treatments For Parkinson’s?

By A MyParkinsonsTeam Member 124 answers
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What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A MyParkinsonsTeam Member 136 answers
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What's Your Mantra ?

By A MyParkinsonsTeam Member 96 answers
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When I Go For A Walk I Tend To Stagger Occasionally Does Anyone Else

By A MyParkinsonsTeam Member 202 answers
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12506 questions

I'm Struggling To Understand- Does Everyone Have "off" Periods? Do You Spend Most Of Time Trying To Move?

A MyParkinsonsTeam Member asked a question 💭
Henderson, TX

I don't know what to do? I started Crexont in September. I have gotten the doctor to increase the dosage 3 times and I'm still not moving like I think I should be. My daughter turned 18 on Nov. 2. Did I get to celebrate with her? No!. I am so angry that I'm not functioning. I am second guessing myself. Is this what my life is now. Do a spend most of my time literally not moving? Laying on my back on the couch or my bed
How much of this is this mental? Diet? Meds not adjusted? Should I be in… read more

A MyParkinsonsTeam Member

Hugs

November 8, 2024

Does Anyone Deal With Excessive Tiredness? I Am Tired Of Being Tired!

A MyParkinsonsTeam Member asked a question 💭
Goodyear, AZ
A MyParkinsonsTeam Member

Thanks so much for the hugs guys. So thoughtful.

November 6, 2024

Is Anyone Having Difficulty Finding A Medicare Part D Plan For 2025 That Covers Rytary? The Insurance Companies Don’t Like The $2000 Cap.

A MyParkinsonsTeam Member asked a question 💭
Waynesboro, PA
A MyParkinsonsTeam Member

I looked it up on the medicare.gov website. There are several insurance companies that cover Rytary (Cigna, AARP) etc. but there aren't many pharmacies that carry it. Looks like mostly the hospitals… read more

November 5, 2024

What Is The Best Disgnostic Tool(s) To Diagnose PD? Does Anyone Know?

A MyParkinsonsTeam Member asked a question 💭
Pitman, NJ

I had a DAT Scan. It is a nuclear medicine test. The result was parkinsonism , unspecified type. I know the difference between PD and parkinsonism, but as stated, it doesn't really say much. My Parkinson's specialist said, "Good news"; it's not degenerative." I was so taken aback that the news was good that I looked at the specialist as if he was crazy. I don't understand this . I do well with C/L and on phone with doctor, I mentioned it, and he made a sound that made me think, he was surprised… read more

A MyParkinsonsTeam Member

I agree Theresa. They are not feeling or experiencing what we are.. I have a lot of experience as a researcher; I think he is right about the vascular parkinsonisnm ;ie "white matter" parkinsonism; I… read more

December 13, 2024

Where Do I Find A List Of My Team Members?

A MyParkinsonsTeam Member asked a question 💭
Glide, OR
A MyParkinsonsTeam Member

To find a list of your team members on MyHealthTeam, follow these steps:

1. Select the menu icon on the top left of the page
2. A menu will appear, and the top heading is 'My Profile.'
3. Select 'My… read more

November 3, 2024

Hi I’m Cheryl And Have Had Parkinson’s For 12 Years. The Past Year I’ve Been Dealing With Terrible Depression. We Are Trying Different Meds.

A MyParkinsonsTeam Member asked a question 💭
Rochfort Bridge
A MyParkinsonsTeam Member

Hi Cheryl, I'm sorry to hear that you're dealing with depression. It's important to address mental health alongside Parkinson's. Here are some suggestions based on my knowledge base:

- Cognitive… read more

November 3, 2024

Anyone Experienced With Dealing With A Drinker With Parkinson’s?

A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

Dealing with a loved one who has Parkinson's disease and also drinks can be challenging. Here are some points from my knowledge base that might help:

- Alcohol and Medication: Alcohol can intensify… read more

November 1, 2024

Does Anyone Use Nutritional Plant-protein Drinks For 27 Grams Of Protein To Supplement Your Nutrition? Does It Effect Your Dopamine On Time?

A MyParkinsonsTeam Member asked a question 💭
Clementon, NJ
A MyParkinsonsTeam Member

When it comes to Parkinson's disease, protein intake can affect the effectiveness of [[treatment:Levodopa/Carbidopa:55d534f51fcaa397470006dd]], a common medication used to manage symptoms. Here are… read more

November 1, 2024

Is There Anybody Out There That Gets Severe Abdominal Pain And Horrific Bloating After Eating Anything From A Small Fruit To A Piece Candy

A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

👋 Jeffreyach, I’ve got severe bloating, constipation and adnominal pain. I have acid reflux so take omeprazole and Famotidine, and 4 Tums. Just started using Sennosiides for constipation. For PD take… read more

October 31, 2024

Does Anyone Have Any Suggestions For A Type Of All Natural Supplement That Would Help With Leg Spasms/Pain?

A MyParkinsonsTeam Member asked a question 💭
Poteau, OK
A MyParkinsonsTeam Member

Some members of MyParkinsonsTeam have found relief from Parkinson's symptoms by using natural methods. Here are a few suggestions:

- Magnesium Supplements: Magnesium is mentioned as beneficial for… read more

October 30, 2024
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