I have completely lost trust in my neurologist. If not an honest to god movement disorder specialist they don’t really know much. Pretty good at detecting vascular issues and tumors but they have next to no clue when it comes to movement disorders and the associated symptoms, digestive issues, combination of active tremors along with resting tremors. Sensitivity to heat and cold, sleep issues, dorsal column problems. Stay with this site and you will quite quickly know more than your run of the mill neurologist.

I had a Dat scan Oct 23rd and results show no Parkinsons. Going to see Neurologist Dec 12th and get some answers hopefully.

@A MyParkinsonsTeam Member - Do you have a history of taking any of the medications that can cause Drug Induced Parkinson's? That may be what your neurologist meant when he said that it isn't degenerative. Drug-Induced PD doesn't progress the way regular Parkinson's does.

Another possibility is that the DaT Scan measures how much dopamine your brain is producing. Usually, when people are diagnosed with Parkinson's their brains are only producing about 50% of normal dopamine. What your scan may have shown is that your brain is still producing normal or near normal amounts of dopamine, hence, it isn't degenerating. So whatever kind of movement disorder you have, it isn't related to dopamine production in your brain.

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A MyParki...

I would say that the information above is pretty comprehensive. About the only thing I can add is that there are too many approaches to diagnosis and there are too many approaches to treatment. This is based solely on my opinion having had Parkinson’s for 12 years it was mild and I wasn’t actually diagnosed until eight years ago. An example is that I was diagnosed by an excellent movement disorder neurologist that observed me walking across the parking lot to my appointment and noticed that I was not swinging my arms. This and lack of head movement is actually a very significant sign of Parkinson’s. He was not wrong and has been consistent in his treatment of me since then.
It’s frustrating that after decades and millions of dollars spent on research, the only sure finding for Parkinson’s was the introduction of carbidopa levodopa in 1970.

Years of experience. N° 1 tool no question about it.