Quick Links
Resources
About MyParkinsonsTeam
Powered By
Epilepsy?
Do you ever have Fits like you are epileptic? Sometimes my legs and arms all shake and controllably. Like I am having a seizure. Until recently I was not aware that this was sometimes a symptom of PD. Apparently there is a link between epilepsy and Parkinson's. Is this something that you have had?
🦉
That's what I would say is a partial Parkinson's freeze.
They usually happen because you are dehydrated.
PD And The Cold Weather - Suggestions, Experiences About Increased Aches And Pain?
Doesn't the body eventually adjust to the cold? I have a little space heater that I use for immediate relief and I also have a beautiful fluffy electric blanket that I throw on myself in my recliner… read more
PEMF. Pulsed Electro Matic Fields.
I am always looking for cutting edge technology to help me with my parkinson's. I'm so sick and tired of popping pills all of the time. I've been looking into this PEMF matt and it seems like it is real. There have been a lot of studies on how it can help with Parkinson's disease. Has anyone else used one? I would be curious if it seems to be helping you at all?
The current testing results have been nearly impossible to compare, and are therefore need more structured testing.
There doesn’t seem to be any testing in regards to Parkinson’s.
Is It The Gabapentin, Or PD, Or Both, RE: Cognitive Decline?
I take 300mg of gabapentin 4x per day for dystonia. I am experiencing cognitive decline - I have trouble explaining myself, because I can't find the right words or I mumble. My executive function is impaired a bit. I was diagnosed with Parkinson's in 2020. I'd love to hear your thoughts on this and your experiences.
I am still using the Gabapentin. It's really hard to know whether or not that's the reason for my cognitive decline. I do know that it helps with the dystonia. I've begun to figure out that it's all a… read more
Did Anyone Respond To My October 25th Post?
it comes and goes, i am staying very active, pickleball, golf, gardening. etc. it helps me a lot, especially the pickleball.
Has Anyone Used The Drug Rytary? If So What Was The Outcome?
Thank you for the feedback. I start on it Wednesday
I Was Told By My Every 4 H That Lev,L,dopa Is Not Effective After A Max 1200mg A Day Timed Released 6 X A Day Time Release?
up to 2
It sounds like you're asking about the effectiveness and dosage limits of [[treatment:Levodopa/Carbidopa:55d534f51fcaa397470006dd]]. Here are some key points from my knowledge base:
- Dosage Limits… read more
My Husband Frequently...more And More Often...complains Of Headaches Usually In The Morning. They Are Odd In The Location.
Usually in back or top of head, sometimes on one or both sides. Anyone else have this? Typical of PD?
I would ask his GP. They could be cluster headaches.
What Is Your Favorite Song?
@A MyParkinsonsTeam Member - just have an all night Irish wake, with lots of music, stories, and laughter. Then they can play all your favorites.
If You Have Not Had DBS Surgery, Tell Me Why.
Just return from my neurologist. She says that because of the severity of my symptoms she believes the only relief that I am going to get is by DBS. Doctor says that I am substantially impaired and unable to do a lot of the things that I need to do. I have not responded real well to leviopa. And because both of my Parkinson's and essential tremors are severe I am thinking to seriously about it.
Parkinson's is progressing very rapidly.
🦉
My husband has the opposite feeling, he wanted to have it while he was doing ok (ish) so that he could have a better quality of life when he could enjoy it. I went with his decision and he is having… read more
Sign up for free!
Continue with Facebook
Sign up with your email
