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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Which Parkinson’s Symptom Surprised You The Most?

By A MyParkinsonsTeam Member 387 answers
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What’s One Thing About Parkinson's That People Rarely Discuss But Should?

By A MyParkinsonsTeam Member 172 answers
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Who Else Doesn't Do Excersizes?

By A MyParkinsonsTeam Member 149 answers
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Who Else Sometimes Question Their Sanity?

By A MyParkinsonsTeam Member 81 answers
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12507 questions

It Has Been Suggested That I Look Into Long Term Health Care. So Far Nobody Will Cover Me Because Of Parkinson's. What Do You Have?

A MyParkinsonsTeam Member asked a question 💭
On the road
A MyParkinsonsTeam Member

Thank God I did and don't have a clue when or why

September 17, 2024

I'm Wondering If Anyone Else Experiences This Condition. Even On Good Days, I Can Feel This Darn Disease Lurking Right Below The Surface.

A MyParkinsonsTeam Member asked a question 💭
Falfurrias, TX
A MyParkinsonsTeam Member

It's a circus and I am the ringleader

September 17, 2024

Is Anyone Out There Taking The Parkinson's Journey All Alone? I Am! It's Very Hard!

A MyParkinsonsTeam Member asked a question 💭
Easley, SC
A MyParkinsonsTeam Member

I live alone...but am in early stages of drug induced parkinsonism. However my daughter and her family live in town here and are good moral support.

September 28, 2024 (edited)

Mum Is 71 Had PD 26 Years. She Is Going Through Stages Of Being Very Sleepy, Unresponsive For Hours (46 The Most) Hallucinating Delusions

A MyParkinsonsTeam Member asked a question 💭
Boston, UK

Is this the end nearing?

A MyParkinsonsTeam Member

I pray my children don't have to see this

September 18, 2024

Who Wants To Meet At The Park In Bloomsburg. I Was In The Army For 14 Months And Juvenile Corrections For 7 Years Was The

A MyParkinsonsTeam Member asked a question 💭
Bloomsburg, PA
A MyParkinsonsTeam Member

Well then 😁

September 17, 2024

What Makes My Hips And Inner Groin Feels Like They Fire So Bad I Had To Go To The ER

A MyParkinsonsTeam Member asked a question 💭
Bloomsburg, PA
A MyParkinsonsTeam Member

Parkinson's disease can cause various types of pain, including burning sensations and muscle cramping. Some people with Parkinson's experience severe pain in different parts of their body, which can… read more

September 17, 2024

Anyone Else Struggle With Shoulder Pain? ?related To Medication Dose

A MyParkinsonsTeam Member asked a question 💭
Johannesburg, ZA

I’m on Sinemet25/100 six times a day

A MyParkinsonsTeam Member

Thanks for your reply

September 22, 2024

What Is "mild Parkinson's"? A Diagnosis, Or A Phase A PD Person Is Going Through That Will Change (worsen) W/time?

A MyParkinsonsTeam Member asked a question 💭
San Francisco, CA
A MyParkinsonsTeam Member

Oooʻ Phil you have a wonderful way of putting things 😂

September 17, 2024

Has Anyone Switched From Rasagiline To Safinamide?

A MyParkinsonsTeam Member asked a question 💭
Stoke-on-Trent, UK

Parkinson's Nurse has me on two weeks flush-out of Rasagaline before starting Safinamide on the 24th. Doesn't seem to be affecting me much. I just wondered if the change was worth it. Looking for personal experiences, NOT studies.

A MyParkinsonsTeam Member

Crazy, I'll research this on the US side and get back to you!!!

October 2, 2024

Anyone Had High Frquency Ultrasound Treatment In Place Of DBS Surgery? Reason Why, Outcome?

A MyParkinsonsTeam Member asked a question 💭
San Diego, CA
A MyParkinsonsTeam Member

I have a consultation for the HIFU in December. I’m not a candidate for DBS due to my memory loss and a depression diagnosis.

September 17, 2024
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