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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Advice Are You Grateful To Share With Others About Parkinson’s?

By A MyParkinsonsTeam Member 101 answers
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What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A MyParkinsonsTeam Member 137 answers
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How Do Beverages With Caffeine Affect Your Parkinson's?

By A MyParkinsonsTeam Member 190 answers
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What's Your Mantra ?

By A MyParkinsonsTeam Member 96 answers
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12527 questions

I Had Read About Vitamin B One Helping With Parkinson. I’ve Had PD For 18 Years And Was Sliding Rapidly. So I Started Taking Vitamin B1.

A MyParkinsonsTeam Member asked a question 💭
Lebanon, PA

I take 1000 mg of B1 every morning and where as I could barely walk I cannot walk without a cane, no brain fog no confusion and just generalized improvement. I read this happened to a certain portion of PD patient but not all I’m lucky. I’m one of them.

A MyParkinsonsTeam Member

I’m rather late on this one. All my days have been great.

August 29, 2024

Anyone Else Benefit From Smoking A Little Marijuana Or THC My Tremors Go Away Completely After Just One "hit"

A MyParkinsonsTeam Member asked a question 💭
New York, NY
A MyParkinsonsTeam Member

You're in the real world Robert, keep it shiney side up
I wish you a pleasant day 😎

August 15, 2024

Have Any Of You Had A Total Brain Fog. I Did The Unthinkable And Gave My SSI Number To A Complete Stranger On Friday. I Guess Parkinson's?

A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

Hate the brain fog

August 11, 2024

Does Anyone Know How Many Years SINEMET Works?

A MyParkinsonsTeam Member asked a question 💭
Placida, FL
A MyParkinsonsTeam Member

That is great news, Thank you 😊

August 11, 2024

What Does “off” Feels Like ?

A MyParkinsonsTeam Member asked a question 💭
Canandaigua, NY
A MyParkinsonsTeam Member

Off is when I'm frozen in whatever position I was in, never sitting of course

August 11, 2024

P

A MyParkinsonsTeam Member asked a question 💭
Canandaigua, NY
A MyParkinsonsTeam Member

Down the hallway, 1st door on your left ...... 😄😄😄

August 11, 2024

My Hwp's Legs Have Been Freezing. Any Suggestions. His BP Has Been Low And Until That Situation Is Taken Care Of Neurologist Won't Do.

A MyParkinsonsTeam Member asked a question 💭
Nmb sc
A MyParkinsonsTeam Member

For his BP, can you get him to take some salt capsules or drink Gatorade? The orthostatic hypotension is one of my HWP’s biggest issues and while he’s on meds for the low BP, he still has many days… read more

August 11, 2024

What Is So New About Crexont?

A MyParkinsonsTeam Member asked a question 💭
Stoke-on-Trent, UK

Crexont was approved by the FDA in the US recently (August 9th 2024). As far as I can tell it's just a controlled release L-Dopa product. It's been shown to offer an extra 30 to 90 minutes per day of "on time" compared to immediate release L-Dopa.

But there are other CR formulations; Caramet, Half Sinemet CR...I am sure many others since the rights to Sinemet expired.

Why the excitement over Crexont?

A MyParkinsonsTeam Member

My Medicare is paying for Rytary. Which costs them over 6,000 dollars every 3 months. You have to start with Sinimet and your doctor has to write you a exception stating that Sinimet isn’t working for… read more

August 23, 2024

Numbness And Tingling Of Lower Extremities Common With PD?

A MyParkinsonsTeam Member asked a question 💭
Utah
A MyParkinsonsTeam Member

Peggy
Nowadays I pretty much think everything relates back to PD. The first few years after diagnosis I didn’t connect the dots
I’ve been told that neuropathy can occur with type 2 diabetes also … read more

September 7, 2024

Is Constipation A Symptom Of Parkinson’s

A MyParkinsonsTeam Member asked a question 💭
Defuniak Springs, FL
A MyParkinsonsTeam Member

It can be and the meds can aggravate it, too. My HWP takes a shot of Milk of Magnesia and Miralax every day to help, plus a magnesium supplement at bed time.

August 11, 2024
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