I sent an email to Eric and Msry, they' have a lot of experiences founding organizations like our'for their impuul.

Actually, I was fantasizing
About exotic trips but I know faculty at Rowan University whio organizerd trips for students and faculty members who wanted to join in.to go to London and Paris.

A long weekend hotel convention, ; location and handicapped friendlly..rooms. if political conventions can raise money for their purpose ,why can't we?
It would take a team of organizers ; my thought was a way to meet each other personally.
Travel agents could be involved. Fund raisesrs too....
President Biden got legislation through to find a cure; There is public and political interest in PD. and a lot of research going on now.
I would write a letter to President & Dr Biden for their advice and VP Kamala Harris ^ the First Gentleman for their imput. And President Elect Trump, he likes publicity, the Obamas, etc. I think that would be a place to start, get the meda interested.. it will take time and that is what most of is have. There are a lot of smart people in our group with various skills and backgrounds to get involved; maybe Big pharma, they stand to profit if a cure is found.
Lastly, environmentalists because pollution and contamination has been proven to contribute to this disease.; I planted a seed, but those who are interested need to get involved.
That"s what I think is next and get the public involved. We are fighters and can do it. It"s good for us and a lot of others who could benefit.
Start small with just a convention at a handicapped equipped hotel; have a drink together, a good dinner and dance, recommended as good exercise for PD pts. Need to sleep now; 5 am and dark as night.ET..
More tomorrow or after Christmas; & the New Year. January is boring...
LOVE to all., Andi60

I agree Lani. I feel like we’re in a testing phase of a real life sci fi situation.
“Knowledge is a deadly friend
when no one sets the rules,
I fear the fate of all mankind
is in the hands of fools”

My husband and I rarely traveled before PD. Once I was first diagnosed and retired (65 years old) we decided to try a cruise to Alaska and then the next year a bus tour to Great Britain. I was nervous, but they both turned out to be great! Then, with Covid and all, we did not travel for a long time. Last year my husband said, "Let's take a road trip from home in NJ to Montana to see friends, then on to California, and finally to Colorado." I told him he was out of his mind, but we did it - gone from home 53 days, saw 23 states, traveled 95 miles. I had the best time, even 13 years after my diagnosis! Of course we were able to do this because of my husband - he did all the driving. We also were free of any expectations - if I could do it, fine, if not we;ll do something else. I learned that hotels have handicapped accessible rooms that cost the same as regular rooms and that most museums and attractions will loan you a wheelchair if needed. This year the road trip plan is to go from north to south on Route 1 - from Fort Kent in Maine to Key West. If all goes well, incredible, - if not, at least we tried.

Sounds great but on a budget too. Not going to stop me from trying. Hello google 😃

I see a lot of the members used the word "but".

In the TV series "Game of Thrones", there is a scene where two sisters discus the legacy of their murdered father. One of the comments they made was that " Father always said anything before but, was bull...t" Since then I always consider statements with "but" in carefully before I use them.