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How Fast Can Parkinson's Progress?

A MyParkinsonsTeam Member asked a question đź’­
Mesa, AZ

I know that symptoms and disabilities vary from one patient to another with PD. But I'm asking how quickly, you or someone you know have progressed through the stages of Parkinson's.

For some time I have lost my sense of smell. Since food doesn't taste all that good, I also lost 90 lb.(Im not complaining about losing weight because I was seriously overweight.)

But my question is, how quickly can Parkinson's progress.? Three years ago I was able to work out or walk nearly all day, balance… read more

December 18, 2023 (edited)
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A MyParkinsonsTeam Member

It processes slowly but it's up to you how fast it will get up exercise try rocksteady boxing or what ever is in your region of the world but it's your life get up and fight don't let Parkinson put you down because it will so fight for your life

December 18, 2023
A MyParkinsonsTeam Member

My husband had early onset and with slow increases in medication and fits and starts of physical activity, his progression was pretty slow. Now that we are reaching the end of the medication line, the disease is progressing again in terms of overall freezing and sudden wearing off periods. Are you on carbidopa/levadopa? Exercise, music therapy, staying engaged in positive activities, these all help a lot, too.

December 21, 2023 (edited)
A MyParkinsonsTeam Member

76 Female, diagnosed in 2019. I was put on cabidopa/levodopa right away. Now taking 8 pills a day. Some things have come and gone. Lately Noticing a lot more aches and pains. Just had a serious bout with sciatica. Never heard of it before parkinsons, but have had it 4 times this year! I can still walk pretty good, but my muscles get tired easier. Before I could walk forever and not get tired. Maybe it seems fast, but with therapy/correct meds some problems may reverse for now anyway. I did the Big and Loud physical therapy and speech/throat therapy. Big help. Stay active. Stay positive.

December 18, 2023
A MyParkinsonsTeam Member

Hello David. Is your doctor keeping a good eye on your meds & tried new ones. I know you are having a really rough time & I am so sorry. I guess progression is different for each person.?The only thing that helps slow down progression is Exercise but you know that.? From my own experience when I stop exercising because of depression, exhaustion, apathy, I lose my motivation & just can’t make myself exercise, then my legs start to get weaker & weaker & go downhill.,I start falling & I get back in physical therapy.,my hands are not as bad as yours, but I still recommend getting hot wax machine. You have control over how hot you want it & you dip your hand as many times to get the wax as thick on your hands. And wrap them in a towel until cooled. It’s like “aaaaaahhh”.!t is so soothing down to the bones. You use it as often as you want.,I do hope the doctor can find different or combination of drugs to give you relief. You might consider getting a new doctor better yet a Movement Disorder Specialist. I got a new doctor a Move. Dis Specialist & she immediately changed the amount and time between my doses & added a 4th dose. You might consider that.
May you & your family have a happy & blessed Christmas.,Hopefully a day when you have less pain. Be Well.
Prayers for you each day
Carol 💕✝️💕🙇‍♀️💕🎄

December 21, 2023
A MyParkinsonsTeam Member

I am still waiting on a diagnosis of whatever condition I have. Going on year 2 of tremors, balance issues, brain fog and lack of motivation. Exercise helps as does listening to music. Also I have started taking vitamins, amino acids alpha lepoic acid. They seem to help. Going to start a new one called methylene blue.

December 19, 2023

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