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My Doctor Just Put Me On The Drug Gocovri Yesterday.

A MyParkinsonsTeam Member asked a question 💭
Tampa, FL

Can anyone out there give me some feed back on this drug if they use it or tried it. Dr. said it was for shorter OFF times and milder dyskenesia. Also said the drug might be expensive. I have not checked into that yet. Any information would be appreciated. Thanks Bean

June 28, 2023
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View reactions
A MyParkinsonsTeam Member

My movement disorder specialist recommended it for me, but I am super paranoid when it mentions cardiac and a new drug. One PA diagnosed my congestive heart failure as, a problem with my weight. Amazing, that any of these "untrained" people are allowed to paint dog's toenails. If we each wrote one horror story, we would have a major best seller. Hard to guess that this is one of my major soap boxes. Sorry, for my rantings. I will try to rein it in a bit faster. Many Blessings and Prayers for all of our safety and healing, love, JudyTx 🌹🌹🌹

June 30, 2023
A MyParkinsonsTeam Member

I have not heard of this before, but I have a favorite website for medicine info WEBMD

https://www.webmd.com/drugs/2/drug-174142/gocov...

Good luck

June 28, 2023
A MyParkinsonsTeam Member

Gocovri is Amantadine. It is moderately expensive. With good insurance it is a little over $1 per pill. I take 2 per day for dyskinesia due to the issues that years of taking Carbidopa Levodopa has caused! Hope this helps 😉

June 28, 2023
A MyParkinsonsTeam Member

I started Gocovri last fall and loved how well it worked. I wanted to continue using it.
Then my insurance changed and it was going to cost a minimum of $900 a month with insurance. Out of pocket is over $3000 a month. The Gocovri grant program reduces the cost for up to $10,000 per year. Then you pay insurance or out of pocket cost until you can renew, which can be done each year. I was confused as to what price they use to figure out you’ve reached $10,000? The insurance price or the out of pocket price? Out of pocket price, I’d reach $10,000 limit in 3-4 months and then have to wait 9 months to renew. If the program pays the insurance price then it would allow 11 months before I reached the limit. I could be looking at it all wrong. This kind of stuff confuses me to no end. Maybe I need to look into some more. Good luck! I hope it helps you!

June 28, 2023
A MyParkinsonsTeam Member

It just seems to calm down my Dyskinesia a good bit!!

July 25, 2023

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