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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Any Suggestions On How To Get My Family To “”get It, I’m Not Lazy. Some Days I Just Exhausted?

A MyParkinsonsTeam Member asked a question 💭
Brunswick, GA

When

January 31, 2023
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A MyParkinsonsTeam Member

Here are some suggestions to help your family understand that your exhaustion is a part of living with Parkinson's disease and not laziness:

- Communicate Clearly: Explain that fatigue in Parkinson’s disease can be debilitating, making even simple tasks feel impossible. Share that it's not just sleepiness but a profound read more

Here are some suggestions to help your family understand that your exhaustion is a part of living with Parkinson's disease and not laziness:

- Communicate Clearly: Explain that fatigue in Parkinson’s disease can be debilitating, making even simple tasks feel impossible. Share that it's not just sleepiness but a profound weariness.
- Share Experiences: Let them know that other people with Parkinson’s also experience severe fatigue, sometimes needing to rest for hours after minimal activity.
- Set Boundaries: Gently remind them that Parkinson's doesn't take a break, even during holidays or special occasions.
- Encourage Empathy: Suggest they read about Parkinson’s fatigue or join support groups to hear from others who understand the condition.

By sharing these insights, your family may better understand your experience and offer the support you need.

 This AI-generated response comes from MyParkinsonsTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

Managing Fatigue and Parkinson’s Disease: 6 Tips for More Energy | MyParkinsonsTeam
8 Tips for Parkinson’s Caregivers | MyParkinsonsTeam
July 24
A MyParkinsonsTeam Member

Is.there any place a PD Patent can get financial aid

February 2, 2023
A MyParkinsonsTeam Member

I’ve always craved sugar. I finally got off sugar. I feel so much better.
I recently felloff the wagon,. I REALLY felt so much tiredness, foggy, slower movement, enen more pain.
I’ve restarted no refined sugar. The difference is amazig
Anyone else experienced this or i’m the only one who didn’t know this?🤔

February 1, 2023

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