Connect with others who understand.

Sign up Log in
Resources
About MyParkinsonsTeam
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Concerns About Sleepiness And Sleep Attacks While At Work

A MyParkinsonsTeam Member asked a question 💭
Belton, TX

Hello and good morning. I'm 60 and was diagnosed with PD about three years ago. I work for the Dept Veterans Affairs, which allows me to work at home full time due to PD and service-related back/hip issues (mobility and pain) after a 20-year Army career. I have excessive daytime tiredness and have been falling asleep with no indication that an episode is coming on. I simply find myself in my chair with my head bowed, experiencing vivid dreaming.

Like my co-workers, my work is evaluated… read more

July 3, 2022
•
View reactions
A MyParkinsonsTeam Member

I suggest you speak to your manager and make him aware of the decline on your work out of your control.

You luv what yuu doing but due to you disease you are handicapped to produce the same quantity of work like before

Your manager knows your position and I'm sure they cud give yuu less work each month and even it it means a less salary to avoid you feeling concern or stressed about your future volume of work

I'm sure they could perhsps give yuu extra time per project or maybe get some assistance on the days you feel you need help

My. Husband is retired but also works part time at an e event company and they also have deadlines and hubby being a perfectionists spends lots of time on the pc.

I noticed his eyes were burning quite often whiie busy with the computer and he has to take breaks often.

This sadly slows down work deadlines and I feel. His pain being his wife and assist where I can

Having someone near you while working on deadlines is comforting and his manager is so kind and supportive which makes my hubby's task more enjoyable

I pray that you will find the courage and support from your employer and to find a way to give you less work or more time to work according to your health

Good luck 🤞 and God bless

Pray often as God hears our cry

I'm. The wife And caregiver of husbsnd 66 diagnosed 12years ago

July 3, 2022
A MyParkinsonsTeam Member

I am 65 and was diagnosed 6 years ago. I went back to work as an accountant last November. I live in PA and work remotely at a federally funded health center in Alaska. I started out 20 - 30 hours a week with the intention of going full time. Except I have the same issue, I fall asleep on my keyboard. This week I had to make a decision to cut back my hours or lose my disability. I've been working since I was 16. I have a degree in Economics, I was a single parent who worked three jobs to make sure my daughters got their educations. Facing the words "I can't" is the most difficult thing I've ever done. But when I told my family of my decision to cut back, they surprised me by responding that they were relieved. They didn't support my attempt to work full time. They worried about what it would do to my health. They didn't say anything because they support the decisions I make, but they are relieved that fate intervened. Now they are helping me adjust to my "new normal". Talk to your loved ones. I bet they are also worried and would rather have you slow down and be there for them rather than continue to push yourself and suffer symptoms. This new normal sucks frankly, but it's not surrendering to the illness, it's changing tactics to outsmart the enemy. I'm married to a Marine, and improvise, adapt and overcome have become our mantra. It might be helpful to think of your new normal as another challenge to meet and conquer.
The great thing about this forum is that you can talk to others facing the same challenges, doubts and fears and know they understand.

July 3, 2022
A MyParkinsonsTeam Member

I’d like to tell you it will be fine, but it won’t not being able to do what you need to do adds stress which makes it worse. I have been where you are. I didn’t want to admit it to myself and I eventually got myself fired. It’s time to park walk away. You will be better for it.

July 3, 2022
A MyParkinsonsTeam Member

You are doing your best and hope that there can be a reduction in quantity of work you are given so that quality if what you do is not compromised

July 3, 2022
A MyParkinsonsTeam Member

accept the way it is and keep trying there is not the answer we would like to hear.

July 3, 2022

Related content

View All

Northera

A MyParkinsonsTeam Member asked a question 💭
Beachwood, OH

Can Parkinson's Have A Detrimental Effect On Sexual Function?

A MyParkinsonsTeam Member asked a question 💭
New York Mills, MN

Does Anyone Have Any Experience With Sleep Attacks? It Really Is Ruining Quality Of Life For My Husband And For Me Too.

A MyParkinsonsTeam Member asked a question 💭
Ansonia, CT
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in