Hi Sarah.
For starters I’m not a cat named Chile. My husband did that. My name is Elly. Thanks for your response.
Yes, CVS Specialty at refill time always asks about side effects. I take 18 100 mg pills a day! Nobody ever told me not to lie down after taking the med; only not to sleep within four hours or so of bedtime.
Thanks for the heads up ... no pun intended!
As far as reduced weight gain is concerned, to me that sounded like an oxymoron. Do you lose weight or not? After asking my neurologist & CVS about this, with little satisfaction, I read this probably applies to reduced weight gain in infants. I will not be getting pregnant anytime soon so that should not be an issue.
I was never definitively diagnosed with nOH. I have always had low blood pressure and now it’s even lower . That’s why the doctor put me on Northera. I didn’t and still don’t get dizzy upon standing unless I stand for long periods. The drug has brought up my blood pressure a bit but not significantly, which has me questioning its benefits for me. In addition, I take Sinemet (1 1/2 25-100 mg 3 times daily) and Fludrocortisone to help raise my BP.
I try to exercise often and I think that doctors tend not to emphasize how important that is .
Thank you for adding me to your team and please keep me updated on how you’re doing .
Best,
Elly

I am taking 3. 25 - 100.x4 daily. I have some off times which l take 3 extra for a total. Of 15.seems like
A lot.but. it working
Looking for 2nd.opinion