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I Have Been Diagnosed 3 Years Ago With PD. I Am On 2 Tablets

A MyParkinsonsTeam Member asked a question 💭
Yarmouth, ME

Pd. I am on 6 tablets of sinamet a day. It has been working fine up till recently. I am getting more off time the before. I read that you can only take 8 tablets a day. Has anyone had this same experience and what did your doctor do about it?
Thanks
Larry

March 29, 2022
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A MyParkinsonsTeam Member

i take 1.5 at 12am, 2 at 6am, 2 at noon, 1.5 at 6pm and 2 extra if i have breakthrough problem. Neuro was going to increase if I wanted to up the dose, but I chose to stay with current dose. I have been told by a wife of prior PD patient that his doctor told them there is no limit and people can take as much as tolerated. Now, maybe that was end stage only, but I know my doc was going to have me on more than 6. I do better fixed times spaced evenly but some folks only do daytime doses. I tried both and this works better for me.

April 8, 2022
A MyParkinsonsTeam Member

Marien thanks for your response it's nice to know we are not alone on our journey.
All the best
Larry

March 31, 2022
A MyParkinsonsTeam Member

I take a 25/100 cl every 75 minutes the first pill of the day is a50/200 extended release cl

March 29, 2022
A MyParkinsonsTeam Member

I’m 3 years post diagnosis as well. I take 1.5 tablets 100/25 C/L 4x daily. Off times with freezing coming more quickly. I’m starting PT next week to assist with freezing strategies.

March 29, 2022
A MyParkinsonsTeam Member

Before making any changes in your dosage ALWAYS ask and work with your Neurologist (Hopefully an MDS certified Neurologist).

April 14, 2023

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