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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do Most Of You In This Group Take Carbidopa Levodopa?

A MyParkinsonsTeam Member asked a question 💭
Glendora, CA
May 14, 2021
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A MyParkinsonsTeam Member

Gbaby58, I had that experience with. Insurance not covering extra carbidopa. My daughter heard from a co-worker about PAN Foundation, an organization that will pay the extra cost of uninsured meds. They actually sent me a grant for $3,000, good from 12/2020 to 3/2022. I haven't used it because right now I'm not takinh C/L at all. Feel better without it at the moment. Go to PAN Foundation online to apply for help.

May 19, 2021
A MyParkinsonsTeam Member

The doctor changed my CL to (Phone number can only be seen by the question and answer creators) and 8:00. A lot easier to remember. Have alarm set on my iPad.

May 23, 2021
A MyParkinsonsTeam Member

I take CL 25/100. My script says take 2 tablets 3 x/day. I wouldn't want to be without it. So I take a total of 6 tablets per day.

September 15, 2022
A MyParkinsonsTeam Member

I do too. 4x's a day My Dr. sayed 5 X's but I go to bed so early that I skip the last dose and it doesn't seem to matter. Hugs Rosie🤩

January 12, 2022
A MyParkinsonsTeam Member

My husband takes c/l 50/250 3xday was increased from 25/100 2years ago. He has been on it since 205 10 years before he was diagnosed with PD. But we were going thru VA and they tried everything to not give him a diagnosis. finally after a DATscan they had to agree.

May 23, 2021 (edited)

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