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Is Anyone Taking The Drug Gocovri (New Amantadine), Any Help Or Side Effects

A MyParkinsonsTeam Member asked a question 💭
Tampa, FL

Went to the doctor yesterday and he put me on new Amantadine drug. I know I mentioned it way back when on this site but it was pretty new then and no one knew too much about it. How about now, anyone taking this? Bean

November 28, 2018
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A MyParkinsonsTeam Member

I admitted myself to the the rehab hospital, in Ogden UT, they specialize in PD. I was there for 3 weeks because Dyskinesia was intolerable. The Therapists were great, but the doctors did not know what to do with me. The tremors were disabling, I remember sitting in a chair just shaking not being able to move just shake. This is when I told them that a boxing buddy was taking Entacapone 200 mg along with her carbidopa-levodopa 25-100 mg and to amanadine 100 mg at 6:00 a.m. and at noon. This regiment has worked since. I have off times just before y next dose and my neurologist tried to adjust my doses of carb/lev taking more often, 1every 2 hours instead of 1 every 3 hours but the Dyskinesia came back throwing my gate off again. I am due for my noon pills now its 11:45 and am swaying from side to side with the Dyskinesia, not horribly though. I get up early around 4:00 a.m. and I shake some then, no meds till 6. and I do meditation and breathing, and this morning I was able to relax my tremor in my foot and meditate for 20 more min before my med at 6:00, maybe a freak accident i don't know yet. But the meds are a guessing game everyone is different.

April 8, 2021
A MyParkinsonsTeam Member

Me too! The Amantadine side effects-the hallucinations and worsening of symptoms was scary!

March 14, 2023
A MyParkinsonsTeam Member

I take Amantadine 100mg 3/day plus Rasagiline 1/day and a Neupro 6mg patch. I do not take C Carbadopa/Levadopa because I had a severe allergic reaction to Sinemet after my second dose. My symptoms are fairly well controlled except for pain.

June 14, 2020
A MyParkinsonsTeam Member

Amantadine gave me hallucinations and worsened my PD symptoms.

March 3, 2023
A MyParkinsonsTeam Member

One thing that stands out in the post that I sent 8 days ago is that the $175 is for over the counter supplement drug at NO cost to the person. The only qualifier is that your on Medicaid and Medicare. That's it! It is a medicaid advantage plan I got confirmation back from CMS. sO ITS ON THE LEVEL. Really 3500 on hearing aids. We all are on medicaid and medicare aren't we? 1-(Phone number can only be seen by the question and answer creators)
Raffeal. ( hope i spelled his name right. hugs Rosie

September 23, 2022

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