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Anyone Have Muscle Pain That Parkinsons Ned’s Do Not Help?

A MyParkinsonsTeam Member asked a question 💭
Yakima, WA

Have been diagnosed with Parkinson’s 4 years ago. Doing great on low doses of Sinemet and Mirapex. About a year ago developed muscle pain which is worse in the morning (mostly on the left side buttocks and low back). Increasing med’s did not help. I keep exercising but some days the muscle pain is so bad I do not want to exercise. I have tried everything from exercise, stretching, Tylenol, topical analgesics, trigger point therapy, massage, tens unit etc. Nothing seems to help. I believe it is… read more

September 29, 2018
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A MyParkinsonsTeam Member

I have stiff legs and aches but not enough to start complaining about considering being a Parkinson's patient for 15 years. I sometimes ackle all over

August 9, 2023
A MyParkinsonsTeam Member

This is what it sounds like I have spinal stenosis and I have had back surgery and It has helped quite a bit .

October 20, 2018
A MyParkinsonsTeam Member

My husband takes Gavapenting also and it has help with his back pain.

September 30, 2018
A MyParkinsonsTeam Member

Are you sure it isn't muscle pain. As a MT I know that our muscles tighten during spasm and if not relaxed the muscle tightening continues down our body.
go to Ytube type neuromuscular and the area stretches
easy stretches' they are really easy,, I stilll use a massager levery day,

October 15, 2023
A MyParkinsonsTeam Member

Debby3 your post jumped off the screen when I read it. Polymyalgia Rhumatica 😒 For almost 7 years that was the diagnosis. I had cortisone shots, shots for in between, prednisone for extra and pain meds. It ruined my skin. It is so thin that it tears at the slightest thing. I bruise like I'm 95 years old ( I just turned 64)) All those cuts lead to serious infections and 1 that was turning into sepsis. I say this because all of my symptoms were Parkinson's. All. I know this now because I had every xray, ct, mri, blood test, and specialist you could imagine. It was my neurologist who started to recognize the pattern. Side note: I had the neurologist for my Epilepsy. The sad part was that my appointment where we discussed this was to be followed up with actual work up however my dr got sick. Months later he passed ( RIP DR HAAS) and I was now trying to look for a new neurologist during COVID 😕 This put me back 2years. This past July I was diagnosed with Parkinson's. Pain was one of my primary complaints. It owned me. I was getting significantly slower. I was falling all the time. Things just fell from my hands....but no real tremor to speak of. I'm very animated so no masking. I was easily confused. My body felt like 900lbs of wet cement. Walking was exhausting. I kept saying that something isn't right, we haven't figured it out yet. This was a nightmare. Finally I got serious about doing my own research. After my last appointment with a back surgeon who said he saw nothing to operate on, i went to my new neurologist and offered up my test results and my research. She prescribed carbadosa/levadopa. Almost immediately there was a huge difference. I am in stage 3. Things are slipping faster than I expected. We have already upped my meds.
I wish you the very best in your journey! And prayers for all who deal with this 🙏

October 7, 2023

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