Nigel2 - My symptoms are very similar to yours. I have burning legs all night long, and sometimes they feel heavy as lead. And sometimes I feel weakness all over my body, which makes it scary to walk. I was diagnosed in 2020 so I've been taking Sinemet since then. It feels like the symptoms are constantly changing, evolving. I see my nurse practitioner for my neurologist frequently (she is wonderful) and each time I see her, something new comes up. It's hard to to tell what symptoms are the result of Parkinson's versus side effects from medication. What amazes me too is how unpredictable Parkinson's is. You can feel great one day, and absolutely crash the next. It's a constant roller coaster right. I commend you for daring to face the truth about Parkinson's. You have a lot of courage. Good luck to you.

I dare the person to post, to start your post with the Sue....de word just to keep AI busy!!!

First off, Nigel, my sincere sympathies in your struggles with this God-damned (sorry, I just have no polite way to say it) "disease" I take such perverse delight in mocking. I understand what a serious business it is when one reaches the advanced stages. My jokes are mostly in the nature of whistling while one passes a churchyard at midnight on Halloween.
My best friend from my undergraduate college years, Best Man at my wedding, suffered horribly from Parkinson's. He talked often with me about how he gradually lost the use of his legs; he had been a vigorous athlete (rowing, cycling, distance running, tennis, squash, sailing) and often bitterly lamented the loss of those gifts. He ended his days in an assisted-living facility. His wife (I was Best Man at his wedding, too) said he finally just surrendered to the blasted affliction, gently slipped his mooring and passed on.
My neurologist tells me my case of the damned plague is still relatively mild; it sure doesn't seem that way to me at times. In the dreary wee hours of a sleepless night, my thoughts sometimes turn to musings about what I'll do when I begin feeling more useless than I already do. Like my father before me, I don't want to be a burden to my family.
On a positive note, I feel blessed to have the moral support of my family and friends -- including most assuredly all those I've encountered in this jolly fellowship.

Bonus points for "The Green Mile" reference ("I think this boy's cheese done slid off his cracker")

John, you remind me of someone I once knew. He was the most unquestioning, faithful man, and I the most questioning and committed atheist. We debated, we didn't argue. It's not necessary to come to blows just because we disagree.