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Top 10 search results for "people should realize that they are in charge of their health and treatment i think the medical people are just team members" in Q&A. To see all results and access other features, sign up for free.

Anyone Taking Mucuna Pruiens With Success? Do You Take It In Place Of C/L?? Thx!!

A MyParkinsonsTeam Member asked a question đź’­
Lake Charles, LA

My HWP is on stalevo which makes BP drop dangerously low! Maybe mucuna can help.

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Does Anyone Know How Many Members Are On This Parkinson Team Website?

A MyParkinsonsTeam Member asked a question đź’­
Tampa, FL

Just curious as it seems like there are so many new people joining this site each day. Bean

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A MyParkinsonsTeam Member

Koo

Advanced Warning; I Won't Be Posting Anymore After I'm Dead.

A MyParkinsonsTeam Member asked a question đź’­
Woking on Sea UK

When I die I won't be posting any longer but my wife will post a brief message saying something like he's gone ! However .........

If you make weekly visits to an elderly friend living alone with failing health you're likely to notice when they die but what about on line ? You may have conversed for years knowing only their name on a forum. No address to write, No email, No phone, some knowledge of family and friends but no way of contacting any of them and one day they're gone. Silence. No… read more

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A MyParkinsonsTeam Member

I have provided my daughter with all my contacts that she she would contact

Any One Experiencing Short Term Memory Issues?

A MyParkinsonsTeam Member asked a question đź’­
Bradley, IL
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A MyParkinsonsTeam Member

All your answers are right on. It helps to know that others are going through the same experiences. However. family issues only add to our problems. Its a difficult situation for both the caregiver… read more

How Do You Define A Parkinson’s Diagnosis? By A “stage” Or “level”?

A MyParkinsonsTeam Member asked a question đź’­
Grove City, OH

I thought there were 5 stages. However I’ve seen newer members describe their PD diagnosis as mild, medium or severe.

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A MyParkinsonsTeam Member

My understanding is that there are 4 stages. The last stage is the most difficult for both the patient & the caregiver.

What Are The Effects Of Anesthesia/surgery On PD?

A MyParkinsonsTeam Member asked a question đź’­
Allentown, PA

My husband is really apprehensive about having knee replacement surgery. He is afraid he won't come out of it and/or the PD will be worse.

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A MyParkinsonsTeam Member

I’ve had a couple of surgeries I had a meniscus repair done on my knee. I did not have a knee replacement. I’ve done well, but the whole ordeal does kind of wipe me out for a couple of days. I just… read more

What Countries Other Than The USA Are Seriously Researching And Finding A Cure For Parkinson's Disease?

A MyParkinsonsTeam Member asked a question đź’­
Carrollton, TX
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A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member @A MyParkinsonsTeam Member @claytoncach

Your assessments of the pharmaceutical, insurance and clinics, hospitals, and much of the medical industry is beyond greed. We… read more

NOH Help

A MyParkinsonsTeam Member asked a question đź’­
Lake Charles, LA

I posted this already but not sure where! Sorry! But how are y’all managing meds for orthostatic hypotension? We’re all over the place trying to get stable BP started with midodrine for several months but BP spiked and became erratic. Now trying very expensive droxidopa . Now at 200 mg still too low. Thx for sharing experiences!

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A MyParkinsonsTeam Member

I to tried midodrine for low BP. I would walk 5 to 10 steps and down I went - usually hitting my head on the door, handle, counter wall and floor. Amazing I didn't have a brain bleed since I am on… read more

Do You Have DIP?

A MyParkinsonsTeam Member asked a question đź’­
Ormond Beach, FL

My neurologist says I have DIP. Does anybody else out there have the same diagnosis? I would like to hook up with fellow DIPper to compare medications that might be suspect. My doctor suspects Vraylar, Lithium, and Clonazepam the latter of which I'm weaning off now.
Alison4

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A MyParkinsonsTeam Member

Kenneth Bruce you may not intend to sound cold an uncaring. But let me tell you. I was diagnosed with DIP and it was traumatic. It’s not just a snap of the fingers to change teams. Insurance, how do… read more

Is It Common To Change Meds, And Even Drs Midway Through The Battle?

A MyParkinsonsTeam Member asked a question đź’­
San Antonio, TX
A MyParkinsonsTeam Member

Yes, it can be common to change medications and even doctors during the course of managing Parkinson's disease. According to MyParkinsonsTeam members, the effects of new medications may take time to… read more