Advanced Warning; I Won't Be Posting Anymore After I'm Dead.
When I die I won't be posting any longer but my wife will post a brief message saying something like he's gone ! However .........
If you make weekly visits to an elderly friend living alone with failing health you're likely to notice when they die but what about on line ? You may have conversed for years knowing only their name on a forum. No address to write, No email, No phone, some knowledge of family and friends but no way of contacting any of them and one day they're gone. Silence. No… read more
I have a hard enough time communicating with the living. 😂
It is a sad part of life: people come, touch our lives, and then they go away and often we have no way of knowing what happened to them. It is especially true online, when we generally don't ever meet face to face. I think the people I meet here and on other forums are worth the sadness I feel when we lose touch. It helps to know there are people out there willing to listen who can understand where we are coming from in ways that people we meet every day cannot. I have learned from a lot of my virtual friends and have enjoyed a lot of smiles and laughs over the years. What people share of their lives, their thoughts, and their experiences can reach beyond the screen and stay with us long after the words have been archived.
To me a friend is someone who will listen, someone who will care enough to reply to me. Even when I only receive a thumbs up or a heart it means something to me.
Someone like @A MyParkinsonsTeam Member, who really cared about me and helped me when I was first diagnosed. People like Carol ( @A MyParkinsonsTeam Member'smom) I really appreciate her advice and the fact that I know that she cares. Dale's advice helped me a lot when I was first diagnosed.
I wish that I lived closer to these people. There is nothing I would like more than to take a bunch of flowers to Teresa. I love her and she is my friend.
I'm enjoying my new life, PD is still there, I've learned to live with it. I now can find joy again in this new life. Parkinson now is like the wind in my face. It may slow me down but it does not stop me.
To all my friends at my Parkinson's team you are important to me. I think about you often and I pray for your daily.
🦉
I have had some very close, dear friends on this website pass away some unexpected & sudden and some not. I care about all my team members but all 300+ are not my "friends". Those individuals with whom I have corresponded
for years and have grown close to have shared e-mail, phone numbers and addresses. There were about 20+ of us. We agreed to give our contact information to a family member who would call or text us in the event of a death or worsening sickness or injury rendering them unable to communicate. So Phil, lf there are people on this website you really care about, share with and really look forward to hearing from ask them for their e-mail or their number so you can be sure they are okay in the event you don't see any messages from them for a while. I hope this was helpful! ❤️🤗
Phil10...your question is a significant one...on this platform 🤔 they don't let you know what happened to someone you were following
...the folks involved in posting this platform I think they haven't or are not interested in helping members to grieve the lost of a friend...an important part of our life...I would like to see them figure this out...🤠
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