Hi there deadinbed. I knew nothing about Parkinson’s before I was diagnosed either. I’ve never even known anyone who had it. No one in my family has ever known anyone with it. I was scared to death. I started watching videos about it. I learned a lot. It’s tough but the only thing I worry about is just getting through each day one at a time. I don’t worry about tomorrow. Each day is different. You’ll have good days and bad days. Just take them one at a time.

Good afternoon deadinbed see I'm here as well, I'm in the team. I'm in your corner, look ! I'm right behind you, don't lean back ! Sending a box full of love n hugs to you xx❤😘

Deadinbed. Dont give up! There are so many people here willing to help...me included. I may not know a lot yet but am willing to look it up and share. Write things down instead of trying to remember them. Or take screen shots and save them. Thats what I do. In addition to that you can ask your questions more than once on here. They're very patient on this site. Welcome! Write me if you'd like to. Lani
Jacksonville NC. Diagnosed March 2023...age 72 yo.
Sending hugs!!

@A MyParkinsonsTeam Member it’s very late & I am just thinking of you & praying for you. I wanted to check in with you.. Do you realize how many of us love you & care about you. You are important.to us & we care how you are feeling. We are family & we hold one another up when one of us is too weak to stand alone. Reach out to one of us or all of us & we will be here for you. We will keep in touch. God Bless you my dear friend. 😘

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A MyParki...

@A MyParkinsonsTeam Member

You have received a lot of good advice from my friends here at MPT. When I received the confirmation of my diagnosis, I cried. I spent most of my days and nights on YouTube, online and anywhere else I could find information on Parkinson's.

For the first year or so I obsessed with my condition and my future. After a while I realized that this was unhealthy for me. I started to find ways to return to my old life,although it was quite restricted. I have found other things to occupy my time.

Upon receiving the diagnosis, there is a period of acceptance and adjustment. I've seen that many of the people on this site have been able to do this. And are now progressing and a happier time. I hope and pray that all of you will reach that goal.

I know that many who read this will think that maybe I'm not as affected by this disease as they are. And that might be true. But just so you know where I'm coming from I, My doctors tell me that my disease is between stages 3 and 4. Because I also have essential tremors and Parkinson's my hands and l legs are constantly in motion and I am unable to do most of the things that I used to do. I am losing my voice and balance as well as other things related to this condition.

If this is not to say that I am not fighting to keep this disease from progressing too quickly. With speech, physical therapy and occupational therapy I worked hard. I am taking a fairly high dose of carbidopa / levadopa. I work with my movement disorder specialist and I am not afraid to contact him when I have questions.

I hope what I've said as helped you. May the Lord bless and keep you.

🦉

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A MyParki...