Connect with others who understand.

Sign up Log in
Resources
About MyParkinsonsTeam
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

For Those Of You Who Had The DBS Surgery, How Often Do You Get Reprogramed? Bean

A MyParkinsonsTeam Member asked a question 💭
Tampa, FL
August 24
View reactions
A MyParkinsonsTeam Member

I've seen a couple of articles lately about the new DBS surgery where the device is self-adjusting. It is supposed to more effective. https://parkinsonsnewstoday.com/news/pilot-stud...

There is also the option of ultra-sound. It is being done in a few hospitals in the US.

Pilot study: Adaptive DBS outperforms standard DBS as Parkinson's...
Pilot study: Adaptive DBS outperforms standard DBS as Parkinson's...
August 25
A MyParkinsonsTeam Member

Now that it has been a couple of years since my DBS surgery I see my neurologist every few months and he adjusts it then. He has showed me how to do it myself but I am afraid to try for fear of messing things up I do enough of that with my laptop DBS Surgery was worth having though even with my personal adjustment phobia.,

August 24
A MyParkinsonsTeam Member

I had DBS surgery in 2015. I went often at first till we worked out what settings were best and since then I go a few times a year. Sometimes I go more often if there’s a significant change in symptoms or obvious disease progression and we need to make adjustments to compensate.

Surgery was scary but it was entirely worth it for me. I was able to cut my meds in half and that really helped with the dyskinesias I was experiencing. I also had sharp on/off symptom swings and that is practically gone after surgery.

Hope this helps.

August 24
A MyParkinsonsTeam Member

bean...of all the possible ways of treating PD, this, to me at this time, is the scariest 😫...🤠

August 24
A MyParkinsonsTeam Member

Thanks Colleen, hope you are doing well. Thanks for the birthday wishes you have a nice day. Bean

September 18

Related content

View All

I Have Developed Droop Neck I Do Neck Exercise But Little Improvement I Have Very Short Walking Distance. I Am 77 And Have 13 Years Diagnos

A MyParkinsonsTeam Member asked a question 💭
Newport News, VA

For Those Who Have Had DBS Surgery. Has Anyone Had A Problem With The Wires Coming Through The

A MyParkinsonsTeam Member asked a question 💭
Tampa, FL

This Is 2 Questions For All Of You Who Had DBS Surgery.

A MyParkinsonsTeam Member asked a question 💭
Tampa, FL
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in