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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

With Permission, Is There A Way To Obtain Contact Info Of Team Members?

A MyParkinsonsTeam Member asked a question 💭
Burlington, KY

Some of us develop on line friendships or connections with some of our team members. I know the policy of not sharing email or phone numbers on this site is in effect to keep us all safe and secure and I really appreciate that. Does anyone have a suggestion for how we may develop friendships and support beyond PD and this site without compromising our security ?
Maria

August 17, 2023
View reactions
A MyParkinsonsTeam Member

Well, aren't you just wonderful! Thanks for finding this and for sharing the details.

Anyone who would like to expand on our conversations, please feel free to follow the instructions provided by Ice and we can go from there.
Maria

August 21, 2023
A MyParkinsonsTeam Member

I went to COMMUNITY STANDARDS( at bottom of RESOURCES page) and they cover this in an FAQ.
Below is a copy of the steps and FAQ page:

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Solution home / MyHealthTeam / Connecting with Others

How do I leave a message for another site member?
Modified on: Fri, Nov 18, 2022 at 1:28 PM

If you wish to leave a message for another member, go to their profile page. You may also search for their username in 'Meet Others'.

Type in your message in the field below using their name, "Hi @username":

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MyHealthTeam

August 20, 2023
A MyParkinsonsTeam Member

Hi lucas53
I totally agree with you. It would be nice to share and talk to individuals off of the site as sometimes it just seems better. So I def. agree with you on this one. Hope you had a good day. Take care, BFN!❤️🤗😊

August 19, 2023
A MyParkinsonsTeam Member

So sad such a wonderful resource has been tainted. It was enpowering though to just remove myself from that negativity. Hoping to find a safe and kind place to interact with anyone about both PD and non-PD topics.
I'm sorry we share the negativity experience but looking forward to positive and supportive interactions.

August 18, 2023
A MyParkinsonsTeam Member

Thank you for your input. I agree, I would not want to begin a selection process but I've gotten some responses on this site from folks who would like to topics in addition to PD and I'm open to that if it can be done safely.
When I first joined this site, I posted my email address in response to a request and my message had the address blanked out and I received a message reminding me that is not permitted on this site. I get it and truly do appreciate it. I just wanted to check and see if there are any other options.
Maria

August 17, 2023

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