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Anyone Taking Rytary?

A MyParkinsonsTeam Member asked a question 💭
Denver, CO

My neurologist recently changed my meds to Rytary. It seems to be working better then the generic C/L.
It's incredibly expensive ($1300/mo). Of course now being on SSDI I couldn't afford it.
At first my health insurance declined to cover it. Then suddenly they flipped and informed they would cover it. So now it's only $25/mo.
Has anyone else had that sort of experience?
Or has there been undesirable side effects with this med?

July 9, 2023
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A MyParkinsonsTeam Member

Am on it. Experienced a. High Co Pay first two months. Then dropped to 25, then free.

July 9, 2023
A MyParkinsonsTeam Member

I changed neurologists last year and he switched me to Rytary and ongentys". I was so good for several months until one night , my feet froze and I fell., causing multiple fractures to my pelvis. After that, I started falling frequently and it seemed like my meds stopped. Working totally. Dbs surgery was our goal until my doctor told me that since balance is a big concern of mine, he would not recommend it. It wouldn’t help. I am now awaiting Duopa pump orders.

January 5
A MyParkinsonsTeam Member

My husband has been taking Rytary for three years and he hasn’t had in side effects. It works so much better than the original C/L. And he doesn’t have the stomach aches he used to get with the C/L

September 12, 2023
A MyParkinsonsTeam Member

Thanks for your response. After the initial shock of $1300/mo. I good with $25/mo.

July 9, 2023
A MyParkinsonsTeam Member

My husband takes Rytary, it works so much better and he doesn’t have the stomach issues any more, and he doesn’t bottom out.
You can ask your doctor if he can order your medication amount to last 3 months, that would keep your co/ pay down.

July 9, 2023

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