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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Help For Terrible Restless Legs

A MyParkinsonsTeam Member asked a question 💭
Mcminnville, OR

After years my mirapex has stopped working. My neurologist has tried other combinations and nothing seems to work. Currently I am on ropinirole and Gabapentin. Is anyone else dealing with this and what solutions work for you, if any? Is anyone using some of the new supplement combinations they offer online
I can't get an actual appointment with my neurologist for months. She has told me online that she wants to refer me to a sleep specialist, which, of course, takes months, too. If Ii didn't… read more

April 29, 2023
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A MyParkinsonsTeam Member

My husband has a red light helmet that he uses twice a day for red light therapy and this helps with his sleep..

April 30, 2023
A MyParkinsonsTeam Member

I posted the other day. I do not have RLS, muscle/calf/foot spasms anymore. Pramipexole, 0.5 mg , 3 x daily. Completely cured me.

February 11
A MyParkinsonsTeam Member

I do feel for you! Both the Gabapentin Carbidopa/levodopa seem to elevate restless legs for me. In addition to the rest,ess legs my arms and body also wants to jerk. Super weird and irritating! I hope you find something that works soon. I will say I do not understand why so many people get referred to a sleep study program when your Neurologist or PCP can address this for you. Best of luck ❤️

June 14, 2023
A MyParkinsonsTeam Member

I know the feeling all too well. I've been on Horizant (Gabapentin) for several months and it has cut down on the RLS. However, my doctor switched my Carbidopa/Levidopa meds to something called Stalevo. This has a few negative side effects one of which is the return of RLS with a vengeance. I'm still on a trial basis but I suspect he will take me off of Stalevo soon. One can only hope. It is currently 5:30 am and I've been up with RLS since 2:30. If I weren't afraid of heights, I'd climb up on the roof and jump. Thanks God there's a place to vent. Love you all God bless.

April 30, 2023
A MyParkinsonsTeam Member

Carbadopa levadopea helps me when mine was getting bad at night the Dr increased my meds I'm on 8 pills a day and I quess when it gets worse again we increase again but how many pills can a body take

April 29, 2023

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