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My Husband Has Parkinson's. When Should A Patient Use A Movement Disorder Doctor And Stop Seeing His Neurologist?

A MyParkinsonsTeam Member asked a question 💭
Fresh Meadows, NY
January 30, 2023
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A MyParkinsonsTeam Member

After being dismissed by multiple doctors including three neurologists over the 5-year period of time. The 4 and 1/2 months I waited to see a movement disorder specialist was well worth it. Once you I've had your first appointment with a movement disorder specialist you should no longer have to wait long periods of time and between appointments. I see my doctor every other month and communicate with him whenever I need to in between visits.

That doesn't mean you need to just suffer until you can see a specialist. If you can find someone that will help you now great. But at some point in the future you will likely end up being treated by a movement disorder specialist.

🦉

January 30, 2023 (edited)
A MyParkinsonsTeam Member

NOW!
I cannot emphasize too much the important of going to a movement disorder specialist.

A neurologist that sees a half a dozen PD patients in a week does not have the knowledge of a movement disorder specialist who sees as many as a hundred PD patients in a week.

They are hard to get into, so set an appointment now. You will receive the same advice from many people in this forum.
🦉

January 30, 2023
A MyParkinsonsTeam Member

My husband with Parkinson's, early stages so far, has been seeing a neurologist recommended by his primary care doctor. He is very thorough. He sees him every 3 months. The only thing that I don't like is that this neurologist does not have a "my chart" to ask questions or check results of tests my husband has had done. When we have had a question, we need to leave a message with his secretary who later relates it to the doctor. Also we wind up waiting for his appointment for 2 hours in the doctor's office. The secretary told us to come first thing in the early morning or call before we leave for the appointment and find out the wait time. If it is the usual 2 hours, we leave much later so when we get there 2 hours from our scheduled time appointment, we arrive and wait less.

January 31, 2023
A MyParkinsonsTeam Member

I'm fairly new being diagnosed with PD been seeing Neurologist once every 3months got to point where I've been asking myself why is he having me see him somuch didn't understand that 🤔 when especially my prognosis hasn't really hasn't changed that much, but now understanding this disease from what I've learning better to see him more often than not so as he can catch any changes in me and with side effects from meds sooner to adjustment with meds if necessary. 🫂 Being that I'm in the early stages of this disease.

January 30, 2023 (edited)
A MyParkinsonsTeam Member

A movement disorder specialist is a neurologist with extensive training in movement disorders, including Parkinson's disease. They typically collaborate with other health care providers to create a comprehensive care plan. While there is no specific time to switch from a general neurologist to a movement disorder Show Full Answer

A movement disorder specialist is a neurologist with extensive training in movement disorders, including Parkinson's disease. They typically collaborate with other health care providers to create a comprehensive care plan. While there is no specific time to switch from a general neurologist to a movement disorder specialist, it may be beneficial if:

- Symptoms become more complex or difficult to manage.
- Specialized treatments or therapies are needed.
- A more tailored, multidisciplinary approach is required.

It's always best to discuss with your current neurologist to determine the right time for a referral.

July 23

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