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I Have A Strategy To Attract Volunteers To Help The Patient And Our Caregivers Everyday Without Feeling Obligated Or Burning Out.

A MyParkinsonsTeam Member asked a question 💭
Denver, CO

I need your input. Watch the Questions and participate. No answer is a wrong one. FIRST QUESTION: What keeps you from asking for help?

May 25, 2021 (edited)
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A MyParkinsonsTeam Member

#Diuja: one way to do it is , Get on Medicaid, If you qualify, (its income generated, you have to be poor, Like me) If you do qualify they will pay for an aide to come to your house. Then when you pass away and only when you pass away will take $1 for $1 out of your estate. like a reverse mortgage. But they can only take out what they have paid out. It pats for everything. If you are over income than you will have a co-pay every month but that is not as high as home care costs. Check it out, I've been doing this for years. If you have a spouse they cannot claim the property till he passes away too. 🥰.

June 10, 2021
A MyParkinsonsTeam Member

#erinanne & #rosemarynorman
That is so funny! I have been there too! Exactly in the various places and situations you both described!

After it happened and I had a chance to think about it, I now assure everyone around me that I will ask for help if I need it! And I do ask often (and don't sometimes.)

When I am out in public I have no problem handing my purse to the person (friend or family) and letting them do all that manual dexterity stuff. They like to help me and I have learned to LET THEM! It makes them feel needed and helpful and good about being with me. And It takes me so long to do everything and I get so tired out from the stress of proving myself (to who?) that when someone is there to help I LET THEM. They totally understand that I am saving my time and energy for when I am alone. Their goal is to support me so that I can stay in my home!

And I straighten the house up before my cleaning lady comes too 😉

Thank you for your comments and entertainment.

May 27, 2021 (edited)
A MyParkinsonsTeam Member

I'm working on getting Medicaid for the same reason. They also pay for diapers if you're unfortunately like me and need them. They are expensive

June 10, 2021
A MyParkinsonsTeam Member

#MelindaL
Thank you! My family told me it makes them feel good to help me because they can (or can't) imagine what my life is day to day. Let me know please how it goes for you!

Take care of you!
KathieAnn

May 26, 2021
A MyParkinsonsTeam Member

KathieAnn the longer you are on mpt the more you realize how many lonely abandoned people have pd a lot of Partners can’t cope or don’t understand pd
And leave I can’t imagine it

May 25, 2021

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