The neurologist doubled my dosage of Seroquel and I am also takingDonepezil and the 2 together and doubling the one has completely stopped my hallucinations and I was talking for hours to people that weren't there. Hope this is helpful.

@A MyParkinsonsTeam Member - maybe the bugs lost interest when you didn't react and went off somewhere else...or are you sure you didn't use some Raid and not tell us?

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A MyParki...

JanetRasmussen, wow, your story sounds like my situation with my husband. He is not violent but was accusing me of sleeping with men and seeing people behind the chair and threatening to call the police. Our doctor put him on Seroquel 50 Mg. Did great and then they started again after about 6 months. Went to 100 Mg. And that lasted awhile and now we are at 150 mg. I noticed one day that my husband did really well and had not had any meds. I now am cutting back on his Sinemet and he seems to be doing well. It is a day by day rollercoaster for sure . He is falling so much that he is bruised from head to toe. He is on Plavix from a by-pass years ago and when he falls and cuts occur then blood is everywhere. This is such a cruel disease. I cry everyday. God speed to you. All of us are in a club that we did not want to join.

I am sorry you are going through this hell. I have heard that PD does this to some people. I hope someone answers that has experience with this. I would absolutely call for help if you are being harmed. i would try to go back to your husband's neurologist and tell him your concerns. I wonder if he can have the DBS surgery? There must be some answers out there, don't give up, also go to your primary care physician and tell him what is going on. I pray you can get some help.

My husband is 62 and was diagnosed 7 years ago. He is an athlete who runs every day and has done many marathons and ultra marathons over the last 40 years. We have been married 42 years happily and never had marriage issues. We have no children.

In February he started thinking someone was on our lanai and called the police - same with the next night. I showed them the paper from his neurologist showing he was in PD Psychosis and they left. It got worse and worse - (yelling at me that I had multiple boyfriends and having them over - also thought I was stealing money...every day he said he didn’t love me anymore and was going to get a divorce and look that day for a studio apt. He also put hidden video cameras in the house to “catch me” and he would see things on the tape that were not there) and having to fly to another island to see the movement disorder specialist was hell. He would disappear and I would be left terrified in the hotel room hoping he was alright because he would turn off the locator on his phone. The doctor took him off all his PD meds - Sinamet and Neupro patch - said he was over medicated and prescribed two anti psychotic meds - one being Seroquel. It took about two weeks for him to stop the
craziness but not before becoming violent enough for me to scream for help out the window since he wouldn’t let me go. The police, fire dept and EMT’s were all here - 6 times! They always said they couldn’t force him to go with them and left me alone with him.

I have no support whatsoever here and the one person from a PD group that I reached out to chastised me for calling. Said to call Adult Protective Services. Also called the Parkinson’s Foundation from the state - no help there.
He is thankfully free from the psychosis and is now dealing with having no PD medication - and taking Seroquel.

I hope they give him some type of medication for his PD because he is so so much worse for having been taken off them.

I had to go to the ER during all this for panic attacks - the doctor said I have PTSD and put me on anti anxiety meds.

I don’t think I can go through another episode like that - it was beyond terrifying and my gentle, sweet husband literally turned into someone I was scared of. PD is hell.