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How Does Your PD Doctor React To Your Non-motor Symptoms? Do You Think They Understand?

A MyParkinsonsTeam Member asked a question 💭
Ballston Spa, NY
March 28, 2018
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A MyParkinsonsTeam Member

I tried the basketball for a year for now and I have developed a mager progress against the pd . I managed to reduced my sinemet from 4 times a day to three and lower the dose

April 3, 2018
A MyParkinsonsTeam Member

I know what you mean about apathy, it is different from depression. I fight it with excercise. Go for a brisk daily walk, get a small basketball and throw it against the wall and bounce it round the yard. Take a skipping rope and build up with a few skips then try faster for high intensity until out of breathe. I can now do 40 slow and 20 fast and I am 69! Good luck.

April 1, 2018
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member. I have a good neurologist and she does not have a clue about non-motor issues. I tried to explain the apathy that I'm experiencing, and her response was "that's not apathy." It is! i don't know how to ge her to understand it and what it does to me. She doesn't get it. I'm not depressed and anxiety is seldom. I'm just stuck with apathy. Sorry I can't be of help to you. I'd love to find someone who has found a way to get neurologists to understand it and help us through it. Thanks for bringing it up. Maybe someone else on this site wlll give us a clue. In the meantime, let's keep plugging along and realize that maybe we son't have it so bad. Sending you a giant hug. I'll get off the couch tomorrow, if you will. Breanna Benjamin

March 29, 2018
A MyParkinsonsTeam Member

I doubt that neurologists fully understand the non-motor symptoms. It's not that they don't want to, but because of PD's complexity, I doubt that they can. Ordinarily, apathy, anxiety, and depression can be challenging to treat, but become more so in patients whose brains have been compromised by a disease. I've come to the conclusion that unless you have PD you can't fully understand it.

That's not to say that they aren't aware of the non-motor symptoms. I was surprised by my neurologist several appointments ago. She sensed that I was becoming quite anxious, something that I didn't even realize, and we've successfully treated it with medication. As always, if you've experienced a change, bring ti to your doctor's attention. They are dependent on our feedback to give us proper care.

March 29, 2018
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member @A MyParkinsonsTeam Member Thanks for your answer. I asked the question because I've had the EXACT same experience with my "good" Neurologist during my latest visit. I talked about how I can't get anything started, let alone done. How I sit around feeling stuck all day. I have depression/anxiety, but I told her I don't feel like those are the root causes. She told me I don't have Apathy because "you want to do things, but you just don't," With Apathy, you wouldn't even want to do things, and you certainly wouldn't feel ashamed of your feelings. I'm thinking of calling the Neuro who diagnosed me - he's at a different hospital now (head of Yale Movement Disorders), but maybe he can lend some clarity. Hugs back to you - Maybe we should have a competition... which one of us can get off the couch first! :)

March 30, 2018 (edited)

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