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Did You Have Symptoms That Were Noticed And Eventually Led To Your Diagnosis Of PD? Were They Primarily Motor Symptoms? #2

A MyParkinsonsTeam Member asked a question đź’­
Burlington, KY

Based upon the MJFF 360 document, You might be interested to know that the presentation of a resting tremor, rigidity and/or bradykinesia on one side of the body are the most common symptoms that gets health professionals thinking about a diagnosis of PD.

Is this true for you?

Until the biomarker being researched now, a PD diagnosis is based on the person's medical history and physical exam. The exam is done primarily to rule out other conditions that can look like PD. A DaTscan can't… read more

November 11, 2023
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A MyParkinsonsTeam Member

OK, all together- this really stinks and I'd like it to go away now!
I asked my doctor if I could send PD back since I'm done with it. He just looked at me like I was crazy but I was serious. I'd like to know where the return dept is and who is in charge.
Maria
Maria

November 15, 2023
A MyParkinsonsTeam Member

What a fascinating story James. My fear is that there is so much more known about PD but there is no central depository for the info so little sharing and collaboration occurs and here we sit. I pray thee latest Fox research gives the radiologists and other specialists something to rally around so we can end this thing. I don't believe there is just one answer or just 1 person or teams success at the end of this.
I'll look further into the iron store concept and share anything I learn.
Thanks James,
Maria

November 12, 2023
A MyParkinsonsTeam Member

Love it! 🤣 Maria. I’m thinking about pulling out of some my old legal files and lodge with the court, a protective order barring Parkinson’s from having any contact with me, my family, real and personal property, any access to my social media or any other digital material either in my or another person’s custody, control, and or dominion. Once I get the order to suppress any and all deficits introduced introduced into myself by tampering with my dopamine without my permission or a court order, do I still have to take all my Parkinson’s meds? Folks, this is all in jest. My “mind and body” are somewhere between the planets Jupiter and Saturn just enjoying my Hallucinations and delusions! As you can see byway of this “dopamine starved” body, I do get into an alter state.

November 15, 2023
A MyParkinsonsTeam Member

Hi Jane, I had to retire sooner than I planned because the brain fog I was experiencing became noticeable to those around me and being in health care, I couldn't put patients at risk. Life has worked out better than I hoped when I was first diagnosed and now my goal is to help others live with PD while keeping the beast under control.
Happy to know you and I look forward to pushing forward together, Maria

November 16, 2023
A MyParkinsonsTeam Member

MustangTerri,
When I got my first brain MRI in 2016. It was to check for and used to eliminate some of the possible issues that could be causing my symptoms.
The radiologist who read results and filed the finding noted several things, including mild cerebral atrophy. I was 65 at the time, so that was to be expected and within normal ranges.
One of his findings stated that my midbrain iron stores were depleted. It then said, similarly to what he had typically seen in a brain scan if a person with Parkinson's disease.
The Neurologist and primary care physician were both surprised, because no one had mentioned Parkinson's to the radiologist as I was still in the phase of eliminating other causes, etc..
To the best if our knowledge this radiologist had no before hand knowledge that my initial diagnosis was Parkinson's disease.
The orders were for a baseline MRI and the only thing I said to him was jokingly that they wanted pictures of the inside of my head to make sure I have a brain in there.
Why? How he knew? What it means? These are some if many questions I haven't found an answer to in over seven years. I've shown the report too and ask multiple doctor's what the radiologist meamt in his finding about my mid brain iron stores being depleted, and for the most part, all I get is a blank stare.
My iron and vitamin level have been checked and have come back within normal ranges, so????

November 12, 2023 (edited)

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