Hi John I can honestly say I did not know what to expect my targeted symptoms were painful stiff joints and tremor and my hated distonia and since the op I have not had one single solitary distonia attack my distonia was very aggressive it could literally cripple me up contorted in pain wheelchair bound. I can describe in one word how it feels to be distonia free FREEDOOM no regrets whatsoever and I know I don't but if they had to repeat whole op every 5 years only my battery needs replacing I would agree. I really hope yours is successful and will be wishing you well on March 19th hoping positivity can be felt accross the ocean and miles to speed your recovery. Give yourself a good six months it's a major brain op after all xx
Meds reduced from 21 pills per day and between 2 and 10 injections per day to no injections at all and just 4 pills per day and the surgery to be honest I was asleep throughout but it was a breeze xx

Hi Susan you were one of the first people to speak to me and to welcome me
to the site and one of the first I spoke to whom had been through the DBS procedures,it was you and BettyB's post about DBS that I always look forward to reading.
Please keep in touch with me you are both inspirational People.
Love and hugs to you both,Gavin Tomlinson

I was afraid my age would disqualify me. But after DBS surgery, my Dr. told me I could have the other side done anytime I wanted to. I do know that it may not work for everyone and that it might have to be removed. I hesitated to have it done but I really had no choice because of the tremors. I have both PD and essential tremors. The essential tremors was the worse so that is what they treated with the DBS. I learned that the electrodes are put in different locations for PD and Essential Tremors. I did not have to do all the tests you did beforehand re cognitive, etc. Different DRS. do it different I guess. I am so glad you are doing so well. My PA told me the PD would put me in a wheelchair in the future though.

Hi Betty B, thanks for telling me what to expect from the DBS procedure team of experts that for a better word put you through the mill a few times.
Reading some of the feedback results and the positives that people were sharing I thought that this is for me, is this, I'll go back and tell them, yes , let's get cracking.
But after reading your post it bought it home what and how much you have to go through and after all that, you might not be able to have DBS procedure which would be heartbreaking to say the least.

So thank you for your honesty and sincerity and such overwhelming support for me, for which I am truly grateful for.

God bless you, will speak to you soon love Gavin xx

@A MyParkinsonsTeam Member, hi have you had a good day today?
Lack of sleep and Dyskinesia, what a combination.
One all night and one all day, looks like they've got the whole 24 hours covered!!s

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