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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Answered The Question About Carbidopa/levodopa 25/100mg And Listed My Meds. I Don't Like List All My Meds Alot.

A MyParkinsonsTeam Member asked a question đź’­
Cantonment, FL

no one respond to my answer when I did answer

June 19, 2017
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A MyParkinsonsTeam Member

Hi,JanAllen. Welcome to the world of PD. You will find that there will be many changes in your life from now on, and some of them will be good changes.So where do we start. I have been recommending that members read the document called "About My Parkinson's Team. To get to it you go to the top of this page where you will find a bunch of gray squares in the top right corner. Click on that and scroll to the bottom of the box that pops up. The document will be the last thing on the list. It will explain what we at MPT do, an how you an connect with others who have similar symptoms to you.

I have also written a list of things to do and\or expect as you traverse the great unknown of Parkinson's disease. It follows here. Not everything will apply to you, but you can pick and choose what does apply and save the rest for future reference.

What to tell people who are new to Parkinson’s disease.

Julianne said:
Stay calm. It's not the end of the world.
Tell your family members that you have Parkinson's and talk with them about it.
Be intelligent about it: Learn all you can about your own condition. Pamphlets, books, seminars, talking with others who have Parkinson's, webinars (Michael J Fox Foundation 3rd Thursday webinars are excellent), watch exercise videos. Well don't just watch! Get on the floor and follow the leader.
Talk with your employer and co-workers about it.
If you don't have an exercise program, get one. Health club, Yoga classes (my favourite), Rock Steady Boxing, walking, running. Make it something you will enjoy. It doesn't have to be expensive. There are things you can do at home like walking up and down stairs. My neighbour walks up and down her driveway for 30 minutes a day. You can think of other ideas. Follow along with exercise programs on television.
If exercises are too difficult to do on your own, you might want to ask your doctor for a referral to a Physiotherapist.
Get involved in a social group such as My Parkinson's Team. Or a group in your neighbourhood that might meet once or twice a week.
Once your neurologist gives you an interim diagnosis of Parkinson's disease, ask to be referred to a neurologist who is a Movement Disorders Specialist (MDS).
Watch your diet. Choose healthy foods. Basically follow the Canada Food Guide, which you can get on line. If you don't understand it, make an appointment with a nutritionist.
Take your medication every time, on time, and exactly the way your MDS tells you to take it.
You will add more to this list as you learn how to live with PD.

Julianne (a.k.a.) Julie Weedmark
June 2017

June 19, 2017
A MyParkinsonsTeam Member

Exercise first.Positive attitude, limited meds. support groups.

June 23, 2017
A MyParkinsonsTeam Member

I 100% agree with Julie's answer above
Wayne

July 11, 2017
A MyParkinsonsTeam Member

I would like that.

June 22, 2017
A MyParkinsonsTeam Member

Glenda, I have too many meds. & health problems. But maybe we can share a little

June 21, 2017

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