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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Had Any Experience Caregiving Someone With Parksinsons And Dementia, Specifically Paranoia And Delusions That Can Turn Into Rage?

A MyParkinsonsTeam Member asked a question 💭
Powell River, BC

My mother has been suffering from Parkinsons for over 15 years now and has been experiencing a severe increase in dementia, short term memory loss, paranoia and delusions. She is convinced that everyone is working against her, and that my father, her primary caregiver is having affairs and is trying to get her taken away. He is at his wits end with her increasingly violent outbursts, and is not sure what to do. She has been on a number of psychiatric medications none of which has helped, and so… read more

August 28, 2016
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A MyParkinsonsTeam Member

Has your doctor considered that the delusions and other s/o might be related to Lewy Body Dementia? I recently read that the two diseases are related. Good luck and God bless you.

August 31, 2016
A MyParkinsonsTeam Member

I am always amazed and filled with awe at what the caregivers experience.. This ugly disease takes POWs like no human enemy could ever ever dream up. Your whole family must be hurting so badly. I'm so sorry. I will pray for you

August 29, 2016
A MyParkinsonsTeam Member

yes, I have. That might indicate several other problems in addition to PD...or other forms of the disease. that we don't understand so well. There are a lot of reason's drugs don't work; you might want to talk to your pharmacist. Doctors can't always keep up. Is there another place she can go until things calm down a bit? It sounds like a very volatile situation. You don't want this to escalate. If there isn't, try scheduling short breaks in caregiving...and keep everybody in the loop. Prayer doesn't always cut it, not by itself, anyway. Reach out where you can, ask for help. You sound as though you need it.

August 31, 2016
A MyParkinsonsTeam Member

She could have Sundowners now too. Yes it's part of Parkinson's . Can your Mom still walk?

July 22, 2020
A MyParkinsonsTeam Member

THank you Samantha

October 31, 2016

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