Persecutory delusions can be one of the most challenging symptoms of Parkinson’s disease (PD), both for people living with Parkinson’s and for their family members and caregivers. It’s something that many MyParkinsonsTeam members struggle with.
“Delusions, delusions, delusions,” wrote one MyParkinsonsTeam member who is a caregiver for a relative with Parkinson’s. “Off to a bad start 🙁.”
Delusions and hallucinations are two symptoms of Parkinson’s disease psychosis in which people with Parkinson’s have trouble distinguishing reality from things that are imagined. PDP consists of nonmotor psychotic symptoms that affect the mind rather than the body.
In hallucinations, people perceive things that are not there. They can involve all five senses: visual, auditory, smell, taste, or touch.
Alternatively, delusions are irrational beliefs in which someone strongly believes something that is not true or evidence-based. Researchers have found that persecutory delusions are the most common type of delusion in people with Parkinson’s. They’re characterized by someone falsely believing that others are treating them badly or taking advantage of them.
Delusions can take various forms and may include:
“I began to have delusions. I thought that my children were taking money from me,” one MyParkinsonsTeam member wrote.
Symptoms of psychosis occur in as many as 60 percent of people with Parkinson’s disease. Delusions occur in approximately 8 percent of people who have Parkinson’s. Delusions are often associated with Parkinson’s medication side effects and Parkinson’s disease progression. Cognitive impairment, dementia, depression, or sleep disorders are also risk factors. Delusions can also be caused by some types of infection and other health conditions such as stroke and heart attack.
Read more about what causes hallucinations and delusions in PDP.
In general, persecutory delusions are more common in males than in females, according to StatPearls. These types of delusions can create paranoid thoughts and fearful feelings. Some people with persecutory delusions may try to involve legal authorities if they believe someone is wronging them. People with Parkinson’s may have other types of delusions or hallucinations along with persecutory delusions.
“I’m the wife of a husband with advanced PD. It’s extremely difficult to deal with. He has delusions/hallucinations/paranoia. He has had PD for many years. The delusions started a little over a year-and-a-half ago,” a MyParkinsonsTeam member wrote.
People who experience persecutory delusions may exhibit outbursts of anger, agitation, or violent behavior. People may develop delusions of persecution not only from Parkinson’s but also drug use, other health conditions, and some types of mental illness or mental disorders, such as schizophrenia, schizoaffective disorder, and bipolar disorder. Researchers have linked persecutory or paranoid delusions to low self-esteem and negative thoughts.
Although persecutory delusions are based on false beliefs, they tend to involve situations that could be possible in real life, as opposed to bizarre delusions that involve circumstances that would be impossible and are based on outlandish situations.
Examples of persecutory delusions include:
One MyParkinsonsTeam member shared their experience with their husband: “He wakes up and thinks someone is grabbing him or something.”
Another member said, “My mom has Parkinson’s and has been dealing with hallucinations and delusions for over four months. They’re so bad she’s scared to live at home.”
A third member described another example of persecutory delusions with Parkinson’s: “My mother had a severe delusional episode this morning where she accused me and the caregiver of trying to murder her. We ended up taking her to an urgent care clinic where she was diagnosed with a UTI (urinary tract infection). Had to keep her from opening the car door to get out while driving her there. Fortunately, she calmed down while at the clinic, but she was so out of control. I’m not sure if her regular caregiver will stay with us for much longer.”
If you or someone you care is living with Parkinson’s and experiencing persecutory delusions, there are steps you can take to help manage this difficult symptom.
First, it’s important to discuss delusions with a neurologist to determine whether a change in medication or other medical treatment may be warranted. A doctor can also conduct tests to find out if a person’s delusions are the result of another condition or an untreated infection.
In some cases, antipsychotic medication may be a treatment option for persecutory delusions. Some antipsychotic drugs are known to worsen movement and motor symptoms in Parkinson’s. A Parkinson’s specialist will help you weigh benefits versus risks of different treatment options.
A doctor may recommend counseling (talk therapy), such as psychotherapy or cognitive behavioral therapy. Sometimes counseling can help a person who is experiencing persecutory delusions gain some understanding about how this symptom affects family members, caregivers, and other relationships. Your doctor can provide a referral for a mental health professional.
Counseling and support can also help psychological well-being for caregivers and family members who are tasked with managing persecutory delusions with Parkinson’s.
If you’re a caregiver for someone living with Parkinson’s, here are some things you can do to help manage a persecutory delusion when it occurs:
You can help keep your home safer for loved ones who have persecutory delusions, especially if they’ve ever become aggressive. Keep anything that could be dangerous, such as knives or heavy objects, out of reach. Additionally, clear out clutter and obstacles that could pose tripping hazards.
When a person’s delusion has subsided, sometimes it can be helpful to talk to them and calmly ask them about the experience. But if this type of conversation is disturbing for them, however, it’s best to avoid agitating them.
If a situation feels dangerous and you’re worried about your safety or the safety of the person experiencing the delusion, call 911 or emergency services. EMTs are trained to perform interventions with people who may be experiencing a persecutory delusion and can help ensure that no one is harmed. In severe situations a delusional person may require hospitalization in order to be stabilized.
MyParkinsonsTeam is the social network for people with Parkinson’s disease and their loved ones. On MyParkinsonsTeam, more than 98,000 members come together to ask questions, give advice, and share their stories with others who understand life with Parkinson’s.
Have you or a loved one experienced persecutory delusions? Have you found effective ways to manage them? Share your experience in the comments below, or start a conversation by posting on your Activities page.
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