Quick Links
Resources
About MyParkinsonsTeam
Powered By
Anybody Benefitting From Ubiquinol COQ10?
Sorry, not aware of product
How Do You Manage Elevating Changes In Blood Pressure?
Hi, friends. Ray and I have been having a couple of very frustrating months. His blood pressure is increasing again and is difficult to manage. He has ischemic heart disease and stage 2 kidney disease in addition to early stage PD. We practice an extremely heart healthy diet along with an energetic exercise regimen. He has been on the maximum dose of 10mg of amlodipine for the past year, increased from 5mg last year when a similar problem with unstable hypertension occurred. We are now splitting… read more
Me to as it looked like a lot of blood was going through. They do make valves just for this problem. I just never look forward to more surgery though. Hugs
Has Anyone Used The APOKYN Injection For “off” Time Or As. A Rescue Treatment?
Thank you! Teresa!
Have a good day!
Ketamine. Yale Is Doing A Stugy On Ketamine For Parkinson's, And I'm Considering It If I Can Arrange The Logistics... Comments, Anyone?
Waiting to talk to my neurologist. Have shared texts with mycontact at Yale, and she too says wait for an okay from the neurologist. Thanks.
I Am Newly Diagnosed But Not Out On Levedopa. My Doc Has Me On Pramipexole Right Now Pending Pet Scan Results. Has Anyone Heard Of This?
Yes, pramipexole is a common treatment for Parkinson's disease. Here are some key points about pramipexole:
- Brand Names: Mirapex and Mirapex ER (though both brand names have been discontinued in… read more
How Does Your PD Doctor React To Your Non-motor Symptoms? Do You Think They Understand?
I tried the basketball for a year for now and I have developed a mager progress against the pd . I managed to reduced my sinemet from 4 times a day to three and lower the dose
Apokyn
I am on subcutaneous apopine 4mg pr hour 5 mpules to 10 of saline make to 20 ml syringe .. and delivery over 25 hours ,, at 1 mg bolus . I turn the pump off and remove tubing for shower..the biggest problem is .. when finished shower reconnect pump . I forget to turn the pump back on .after 15 minutes , its like I am saying to myself somethings wrong , I ma finding my breathing s hard . feels tight in diaphragm .. altho my o2 sats are normal .. I fnd it hard to inward breath . I… read more
I Have Found Myself, Fighting To Keep From Having A Angry Reply To Someone, What Can I Do To Prevent This?
I have had Parkinsons for about 4 years , it makes me angry, because I can no longer do the things I enjoy, My husband does every thing he can to help me, but he does not really understand what is going on with me.
@A MyParkinsonsTeam Member. Well said.
Has Anyone Taking Pramipexole Had Bad Side Effects From It?
Yes, Pramipexole, which is marketed as Mirapex and Mirapex ER, can have several side effects. Here are some of the reported side effects:
Common Side Effects
- Nausea
- Dizziness
- Drowsiness
-… read more
Experience With Mirapex
RobH posted he has been using mirapex for his PD. Just wondering if anyone here is also using it and if so any thoughts ? I'm very interested because i need something that doesn't interfere with my blood sugar (Type1 me)
Thanks
dale in B.C.
Your Privacy Choices