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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Are Your Top Tips For Dealing With Parkinson’s In The Heat?

By A MyParkinsonsTeam Member 130 answers

Who Else Doesn't Do Excersizes?

By A MyParkinsonsTeam Member 90 answers

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A MyParkinsonsTeam Member 50 answers

Which Parkinson’s Symptom Surprised You The Most?

By A MyParkinsonsTeam Member 307 answers
11972 questions

What Parkinson's Symptoms Do You Have That You Didn’t Expect?

A MyParkinsonsTeam Member asked a question 💭
San Francisco, CA
A MyParkinsonsTeam Member

So I found this out!

October 10

What’s The Most Important Thing You Learned About Living With Parkinson’s This Past Year?

A MyParkinsonsTeam Member asked a question 💭
San Francisco, CA
A MyParkinsonsTeam Member

I love the mountains especially the the Rockies, but I must be warn.

January 20 (edited)

Does Anyone Else Have Such Vived Dreams And Talk, Scream Or Holler Out In Your Sleep? Does It Wake You Or Your Wake Your Spouse?

A MyParkinsonsTeam Member asked a question 💭
Jefferson, SC

My husband told me this morning that I screamed out so loud last night that our neighbors could have heard me. I don't remember dreaming about anything. Usually, when I dream, it will wake me up or I wake myself up talking or screaming. Kind of scary but have a neuro appointment on Monday and will discuss it then.

A MyParkinsonsTeam Member

My dreams are more vivid but I seldom vocalize them

October 14

Memory Problems.

A MyParkinsonsTeam Member asked a question 💭
Boston, MA

I am having a lot of problems talking lately . I will be talking and forget a simple word and can't think of it. Friends will add the word for me. I also can't follow conversation when people are talking to with a long story.This is happening more frequently. I only been dignosed a yr ago. Is anyone have this problem and what are you doing for it ?

A MyParkinsonsTeam Member

I have similar issues although I have had 2small strokes in language areas in.the brain. Speech.therapy help me learn how to deal with it better though stress will bring it on. In my case it’s called… read more

March 4

Would You Get DBS Again?

A MyParkinsonsTeam Member asked a question 💭
West Palm Beach, FL

If you have had DBS surgery, is it something you would do again knowing what you know now?

A MyParkinsonsTeam Member

Absolutely, I developed severe levadopa induced dyskinesia and had bilateral DBS implants done via GPa in 2015. I have had no more problems with dyskinesia or tremors since then.

October 22

In What Ways, If Any, Has Your Parkinson's Affected How You Consume Alcohol?

A MyParkinsonsTeam Member asked a question 💭
San Francisco, CA
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member - I Love Tarzan! Actually Johnny Weissmuller, the original person chosen to play the role of Tarzan, knew how to yodel & adapted that technique when he came up with the… read more

May 1

What Has Helped You Get A Restful Night's Sleep With Parkinson's?

A MyParkinsonsTeam Member asked a question 💭
San Francisco, CA
A MyParkinsonsTeam Member

I don't know from day to day if I'm going to sleep well or not. I am trying very hard to find out what makes the difference. Some nights I sleep very, very well and other nights I can't sleep much at… read more

4 days ago

What Parkinson's Symptoms Keep You Up At Night?

A MyParkinsonsTeam Member asked a question 💭
San Francisco, CA
A MyParkinsonsTeam Member

Hahaha!😂

8 hours ago

What Triggers Make Parkinson’s Symptoms Worse? How Do You Manage These Triggers?

A MyParkinsonsTeam Member asked a question 💭
San Francisco, CA
A MyParkinsonsTeam Member

Any form of "stress" tends to make my PD symptoms worse. This includes cold temperature as well as emotional stress.

June 29

Which Parkinson’s Symptom Surprised You The Most?

A MyParkinsonsTeam Member asked a question 💭
San Francisco, CA
A MyParkinsonsTeam Member

I would also like to know.thank you

1 hour ago