This group is amazing. I thought that I was alone with my symptoms but now I know that I am not alone. I was diagnosed in 2018. I had terrible tremors in the right side. My speech is terrible and I fell six times in 2023. But not at all in 2024. My balance is awful and i freeze when I am walking. I don’t know if this has any relevance but I had my breast implants removed a year ago and my tremors have stopped. In general I feel so much better. I take carbo/levo every four hours. At bedtime I take an er c/l. Sometimes it is 11 hours before I take another dose.
I feel good and i wonder what would happen if I didn’t take my medication. I am so sorry that I have been rambling …
Thank you for listening.

Hi Alex , thanks for sharing.
I also feel same for my dad. Looks like the doctors have not reached to that point. where they can deduce every possible way things can go wrong, so let's accept this as a ageing and enjoy what good we have . and common at least you don't have tremors .

No tremors since Carbidopa/Levidopa, but lots of symptoms, like fatigue, severe reaction to cold temp, loss of muscle (caused by inaccurate walking: get PD PT!!), fuzzy eyesight, lousy appetite caused by dry-mouth and tongue swelling, and more. So far, no falls.

I also do not have tremors, although my main problem is mobility.

I also don't have any tremors. At all. I'm not able to move without a walker any more. I have poor stability, to the point of falling on my face if I try.
I've been on numerous meds in the past 3 year, none make any difference what so even.
I have no idea where to go for here, except to just except it
And more on for as long as I can. I have zero faith or confidence in the medical community with this issue.
Regarding trials and cures, it's all a joke right now. Just a bunch of labs,teaching hospitals, bio companies, pharmaceutical looks for a payday.
And we, are left with just a hope and an expectation of an easier day with out the fear of a face plant and a hospital stay, followed by a month in a rehab facility, which are like a prison camp to me, then months of physical therapy, and so on.
Of course more meds that do not work.
I know I sound really down about all this, but I'm not .
I really believe that I am the only one that can see this to it's logical end. And , I can not allow myself to depend on, or hand my life over to an office visit and a 10 minute talk, oh yes, more meds.
Sorry..
Do your own research, except where you are, and try to remain busy with anything,
Really doesn't matter.
A group, like this one, or in person,is a nice way to go.
If for nothing else, ideas.
Do give up, be yourself and simply, carry on...
Thanks