I'll just give you some advice. Without the advice of your neurologist I
never would. Just getting it started was so miserable with horrible
intestinal pain for me. Are the Carbidopa Levadopa causing you side
effects? After finally getting accustomed to it they improved my life style
tremendously. Though I did have bad pains in my abdominal area.

It took a long time for that to go away. Then one day that too disappeared.

At the present time I'm doing quite well. I now have fatigue, some
dizziness, trouble with focus...

At the moment I am in the high mountains in AZ. No snow as of yet with
pleasant temperatures.

C/L was tearing up my entire gastrointestinal system. I was seeing a gastroenterologist in conjunction with my movement disorder neurologist and ended up getting off of that medication and I’m doing much better now that I’m not taking it. I have several doctors that are treating the symptoms and it’s working fine. It’s my understanding that.C/L is more effective with external tremors t than internal Parkinson’s problems.

I haven't stopped taking any meds that I have been prescribed, so I wouldn't be able to help you with that. I have just increased them. And they are working fine. Except I think that the Rytary is making me lose my balance more, I take it 3 times a day no,but I'm not sure because I take a muscle relaxer with it for my tremors, and the tremors have stopped, as long as I don't wait too long in between my dosesages. That's when I start to notice that I need to take my meds, some times I forgot to take it on time. That's when I can tell when it is working or not. I also take ropinarol for the tremors and rasagiline for the PD. The rasagiline helps the Rytary, it's like a booster. And the tizanadine helps the tremors. I take meds for my thyroid and heart too. So I have to remember to take it all every day. I keep them in a container that I place them in at the beginning of the week. But I still have to remember to take them. LOL. It's like a hobby now, taking medicine on a daily basis. And my husband had dementia so I have to take care of him also. He takes meds every day in the morning and at night. It's a struggle to get him to take his meds because he doesn't like to take them. Please pray for me, I need it. I had to stop making him take his vitamins because it's a struggle to get him to take them.
Then I don't take them either 😔
Lynda

Barbara, I went off my c/l with no side effects mostly because at no time or strength did it ever lessen my tremor so I've been unmedicated for quite some time. However, this is personal choice and NOT a recommendation.
Hugs, Beau (C7)