Les, slow down my friend. You are 68. 12 CL pills still leaves you quite a ceiling to hit before any major symptoms arise from the side effects of them. Yes, the whole shakey 'Michael J. Fox' thing is from CL. He was diagnosed at 29 in 1985 or so. It was the only treatment. It worked. Still works, but now we know what it causes w/ repeated, continuous use. It's hard to do, I know, but relax my friend. DBS is a long way off if ever an option.

My opinion is to put it off as long as possible, you can't "undo" it once done. I'm 71, and my goal is to out run PD.

Very interesting thread. Im 77 now, i was diagnosed in 2021. I dont have tremors but do have many other symptoms. I started CL at 3 25/100 timed release a day. A year later my neurologist added 2 Selegeline, one in the morning and one at noon. Last month he added one immediate release tablet first thing in the morning and a fourth CL timed release at bedtime. It all works well for me.
When I read some of your stories I feel guilty that my case has been rather mild so far.
My cousin had DBS surgery. He was off work quite a long time. The day he finally returned to work at USAA in San Antonio, he was let go. Three years later he passed.
Something I'm learning is that nearly every PD case is different.
God bless you all.
Carson

I take 3 pills 4x a day I will not do DBS for as long as I can put it off. I am 67 years of age.
I will pray that there's a better answer out there!

The dementia makes me think it could be a reason I've forgotten so much lately