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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Been Diagnosed With PD And Then Discovered They Actually Had MSA In Stead. If So How Did They Diagnose It?

A MyParkinsonsTeam Member asked a question 💭
Haymarket, VA
November 9, 2024
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A MyParkinsonsTeam Member

Osiyo Vicki. I was first diagnosed with Essential Tremors about 12 yrs or so ago, then had a Syn-One biopsy that came back positive in 2022 so my Neuro added diagnosis of PD then. He retired January 2024 so I searched and found a Movement Disorder Specialist Neurologist who after reviewing all my previous Neuro notes, radiology reports, notes from UT Southwestern Medical Center in Dallas Neurology notes including a negative DatScan, and after performing a comprehensive (IMHO) physical examination, she changed my dx from PD to Parkinsonism-type undetermined in September 2024. I see her for 2nd time in November and will hopefully find out more, but in researching Parkinsonism different types it sure seems I check off almost all the boxes of MSA. Playing doctor myself for now until she tells me differently. Maybe I will be able to answer your question more completely then. Praying for you! Wado

November 9, 2024

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