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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is Anyone Not Going To Families After The Holidays Cuz Their House Is Adapted For Their Needs Especially In The Bathroom.

A MyParkinsonsTeam Member asked a question 💭
Brick, NJ

I have significant Parkinson's disease I. I'm between a walker and a wheelchair I told his house is very small there's no other option to have it at her house because we will s*** and mutual grandchildren. I told my husband to go and I'll be fine home he wants me to go in pain and he says at least I'll be happy to see the kids in pain and I can't lay back if I need to. I just feel more able to stay home and comfortable my own surroundings the holidays is the day they can make any day in my mind… read more

November 9, 2024
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A MyParkinsonsTeam Member

It sounds like you're facing a challenging situation with the holidays and your Parkinson's disease. Here are some suggestions to help you navigate this:

1. Communicate Your Needs: Clearly express to your family how Parkinson's affects your ability to travel and participate in gatherings. Use "I" statements to avoid making Show Full Answer

It sounds like you're facing a challenging situation with the holidays and your Parkinson's disease. Here are some suggestions to help you navigate this:

1. Communicate Your Needs: Clearly express to your family how Parkinson's affects your ability to travel and participate in gatherings. Use "I" statements to avoid making others feel accused. For example, "I am not feeling well enough to travel and need to stay home to manage my symptoms."

2. Be Flexible: Suggest alternatives that allow you to participate without the strain of travel. For instance, you could host a smaller gathering at your home or use video chat services like Skype, Zoom, or FaceTime to connect with your family and see your grandchildren.

3. Adjust Expectations: Accept that the holidays may be different this year. Focus on what truly matters, such as connecting with loved ones in a way that is comfortable for you. Let go of the idea of a "perfect" holiday and find joy in the moments you can share, even if they are virtual.

4. Seek Support: If your husband and family are having difficulty understanding your needs, consider sharing resources about Parkinson's disease with them. This can help them better understand your condition and the importance of accommodating your needs.

5. Plan for Comfort: If you decide to attend the gathering, plan ahead to ensure your comfort. Bring any necessary medical equipment, and make sure there is a place for you to rest if needed.

Remember, your health and well-being are paramount. It's important to prioritize what makes you feel comfortable and happy during the holidays.

November 9, 2024
A MyParkinsonsTeam Member

Self care DESPITE the ignorance

November 10, 2024
A MyParkinsonsTeam Member

Yes I agree with you. My advantage is they live 15 minutes away and agree to a maximum of a three hour visit. What keeps me visiting is a limit of 1 every month and a comfortable chair when I am there. They in return agree to my setting the length of visit. My son-in-law died last year and the children are 13 and 15.

November 9, 2024
A MyParkinsonsTeam Member

It’s not easy. My bathrooms are located on the 2nd and 3rd floors of my house. While I have no problems yet, I expect that that will change at some point and we’ll be looking to relocate.
Family affairs and holidays were always celebrated here. However, my son-in-law’s mother also has Parkinson’s, more advanced than mine, and can no longer climb the stairs. All celebrations have been moved to my daughter’s home.

November 9, 2024

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