I personally have been leary of neurologists, who have not went on to get the two years of training necessary to be called a movement disorder neurologist. Although my research was not extensive, it seemed to be consistent that neurologists for the most part get a variety of areas of training of which Parkinson’s is only a small part. The literature did say there are a small percent of neurologist that do a lot of work in the area Parkinson’s, but I’m not sure how you’re gonna find one. Again, this is only my opinion based on the review a small amount of literature and realize I also have an aversion to have someone drill a hole in my head.

The geriatric in countries like the U.K. and U.S. live "lonely lives separated from their children and lifelong friends." As their health deteriorates, the elderly in these cultures often move to retirement communities, assisted living facilities, and nursing homes. In other words if you’re not productive or can’t take care of yourself when you’re elderly, you get warehoused. 😡🥲

WOW, I tapped into the right group this evening. A PA in a neurological facility diagnosed me about 6 months ago and immediately put me on the Dopa twins. I have had lots of side effects, but the trembling has not stopped. Discussion of "alternative" treatments was discouraged until last week when I finally was allowed to see the guy with all the designations. He also didn't want to discuss any other forms of treatment and said I had a mild form of PD and I would be taking 2 pills 3 x a day for the next 6 years (when I will be almost 90). I have located another neurologist in the area who appeals to me more. I'm trying to get an appointment ASAP. I'll keep the Group posted.

My little sis, the deeper I get into this Parkinson's information the more I realize the inconsistencies. I am trying to find out as much as I can from research and working with my doctors.

It seems as lividopa is helping me, but not for very long. Also things got really bad overnight. I was managing things and my tremors were something that I could live with. Now all of a sudden I can't feed myself. Doesn't that seem weird?

I will continue to find out more about PD and my actual diagnosis. I will also continue to consult with my friends here at MPT.

🦉

I was told that because I don't have much in the way of tremors it would not be of much use to me. I don't really want to have any surgery that is not absolutely necessary so if it would not help me I'm not going to even think about it.