Kathryn, it sounds like we are in the same boat. Dyskinesia drives me nuts when I'm sitting in my recliner. I have also worn out the foot of my bed or my feet rubbed together. I hope you have some relief for your essential tremors.

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Osiyo David! Hope you are doing well. I was first diagnosed with ET several years ago ( about 2013 I think). Was referred to another Neurologist who in 2019 said I had PD but my Primary Neuro disagreed with. Was referred to UT Southwestern Neurology in 2022 where they did exams and a DatScan (returned negative) and they ordered an Syn-One Test (returned Positive). My Neurologist said that test was confirmatory for PD and so I had diagnosis of both ET and PD. He retired in Jan 2024 so after an 8 month search I found a new neurologist with specialization in movement disorders such as PD. After reviewing all previous neurologist in Tulsa and UT Southwestern Neurology notes, all my CT & MRI brain scans, DatScan and Syn-One skin punch biopsy result and performing a thorough (IMHO) physical examination she changed my diagnosis from PD to Parkinsonism In September this year. I go back to see her for 2nd time in November and hopefully she will clarify my diagnosis. {After researching, believe I check off almost every box matching up with MSA (Multiple System Atrophy} but we’ll see… Hope my story is helpfull David! God Bless!

David - The ET tremors are a lot more difficult to deal with. It’s also hard for me to eat, and drinking, even more so.

Hey Dale, I can relate to your feelings about changing medications. Sometimes it seems like we are all guinea pigs. I take propanolol and a supplement called tremonol. They do provide me some relief from my ET. If I take too much propranolol it drops my heart rate too low. At my current dosage I do get some relief, but the tremor is still dominate my life. It is very hard to eat.

For PD I'm taking 50/200 five times a day. Over the past few years my PD has advanced making it difficult for me to stand very long. When I walk I stagger a bit but I can still walk around the block. Sometimes it is difficult to stay on the sidewalk.
While I'm still in my '60s, my 92-year-old father gets around better than I do.

Dale, if you have any ideas of how to better live with this one two punch of PD/ET I'm open for suggestions.

Thank you, and thank you to all of my MPT Friends who have supported me for the last few years. May the Lord bless you.

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I also have PD and Essential Tremors. I gave up shaving for fear of cutting myself.

I also have the REM sleep disorder. This is kept in check with Prazosin. This was diagnosed by a Psychiatrist “off label). I wouldn’t recommend it to anyone else, but it certainly worked for me.

My essential tremor seems to be the same as what others have described. I don’t have medication for it. I’m afraid they’ll take a one or the other approach, and I don’t want to trade treatments.